Goodship S
Brain Dev. 1987;9(5):539-42. doi: 10.1016/s0387-7604(87)80082-7.
The aims were to highlight the stresses on Rett's children, their siblings and their parents, and to give some thoughts on how these could be dealt with. The first lecture was concerned with the "beginning" in the Rett's child, the nine points of the parental first response, and problems that occur in childhood. Constructive, practical suggestions to help both the Rett's child during and after regression and the parents were offered. The second lecture dealt with views of siblings, common difficulties and stress factors experienced by families with a handicapped child, and suggestions for a greater degree of integration of the Rett's child within the family unit. The conclusion was that if the family allows the difference within it to be one that makes it more sympathetic and understanding towards the whole population, to make it work for it and not against it, then happiness will be found within the special family.
其目的是强调雷特氏症患儿及其兄弟姐妹和父母所面临的压力，并就如何应对这些压力提出一些想法。第一场讲座关注的是雷特氏症患儿的“起始阶段”、父母首次反应的九个要点以及童年时期出现的问题。讲座还提供了建设性的实用建议，以帮助雷特氏症患儿在退化期间及之后的恢复，同时也帮助父母。第二场讲座探讨了兄弟姐妹的看法、有残疾儿童的家庭所经历的常见困难和压力因素，以及使雷特氏症患儿更好地融入家庭单元的建议。结论是，如果家庭允许其中的差异成为使其对全体家庭成员更具同情心和理解的因素，让这种差异为家庭所用而非与之对抗，那么在这个特殊的家庭中就能找到幸福。
