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撒哈拉以南非洲地区腭裂护理的现状:叙述性综述。

The Current State of Cleft Care in Sub-Saharan Africa: A Narrative Review.

机构信息

12244Northwestern University Feinberg School of Medicine, Chicago, IL, USA.

2429Lurie Children's Hospital, Chicago, IL, USA.

出版信息

Cleft Palate Craniofac J. 2022 Sep;59(9):1131-1138. doi: 10.1177/10556656211038183. Epub 2021 Aug 16.

Abstract

OBJECTIVE

To identify practices and limitations of cleft care in sub-Saharan Africa (SSA).

DESIGN

A retrospective narrative nonsystematic literature review was performed.

SETTING

Literature exploring the management practices of cleft lip and/or palate across regions in SSA was included.

PARTICIPANTS

Full text case reports, retrospective studies, prospective studies, clinical trials, and review articles written and published in English between 1966 and February 1, 2021, were included in this analysis utilizing PubMed, MEDLINE, EMBASE, and Google scholar databases.

MAIN OUTCOME MEASURES

Qualitative themes identified in analysis were clinical practice patterns, current infrastructure and limitations of cleft repair, training and interdisciplinary teams, economic analyses, and international partnerships.

RESULTS

Significant barriers to care identified in SSA include lack of hospital resources, craniofacial training, access to multidisciplinary specialists, and public awareness. These problems make the entire care journey difficult for patients. Increasing public education has the power to diminish late presentations to hospitals. Providing adequate hospital resources and craniofacial training through international and organizational partnerships can ensure that more patients will receive care. Increasing the availability and number of multidisciplinary specialists is crucial to follow up care which aims at improving functional outcomes.

CONCLUSION

This narrative review highlights current practices and limitations in cleft care, emphasizing the importance of effective and timely repair of clefts in SSA. Targeted efforts aimed at establishing sustainable infrastructure for cleft care in SSA can have significant individual and community health and economic benefits.

摘要

目的

确定撒哈拉以南非洲(SSA)地区的唇腭裂治疗实践和限制。

设计

回顾性叙述性非系统性文献综述。

设置

纳入了探索 SSA 地区唇裂和/或腭裂管理实践的文献。

参与者

纳入了 1966 年至 2021 年 2 月 1 日期间在 PubMed、MEDLINE、EMBASE 和 Google Scholar 数据库中发表的英文全文病例报告、回顾性研究、前瞻性研究、临床试验和综述文章。

主要观察指标

分析中确定的定性主题包括临床实践模式、当前唇裂修复的基础设施和限制、培训和跨学科团队、经济分析和国际合作。

结果

SSA 地区存在的显著护理障碍包括医院资源、颅面培训、获得多学科专家、公众意识缺乏。这些问题使患者的整个治疗过程变得困难。增加公众教育有能力减少患者后期到医院就诊。通过国际和组织合作提供足够的医院资源和颅面培训,可以确保更多的患者得到治疗。增加多学科专家的可用性和数量对于旨在改善功能结局的后续护理至关重要。

结论

本叙述性综述强调了 SSA 地区唇腭裂治疗的当前实践和限制,强调了在 SSA 地区及时有效修复唇腭裂的重要性。针对 SSA 地区唇腭裂治疗可持续基础设施的有针对性努力可以带来重大的个人和社区健康和经济效益。

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