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患者和公众参与研究设计和监督。

Patient and public involvement in research design and oversight.

机构信息

University Hospitals, Birmingham NHS Foundation Trust, Birmingham, England.

School of Nursing, College of Medical and Dental Sciences, University of Birmingham, Birmingham, England.

出版信息

Nurse Res. 2021 Dec 9;29(4):11-18. doi: 10.7748/nr.2021.e1786. Epub 2021 Aug 19.

DOI:10.7748/nr.2021.e1786
PMID:34409809
Abstract

BACKGROUND

In recent years, the value of patient and public involvement (PPI) in developing research has become apparent. Patients and service users have insights that are essential to successfully developing and completing research. PPI collaborations may improve the scope, quality, relevance and impact of research. Nevertheless, there are challenges for nurse researchers in ensuring effective PPI is embedded in research proposals and practice.

AIM

To discuss the practical aspects of developing a PPI group, including one approach to convening a PPI group, and provide examples of where a PPI group has refined and improved the design of research.

DISCUSSION

Directly inviting patients and members of the public to collaborate in the research resulted in successful working relationships and tangible improvements to a study's methodology. None of the patients approached had considered collaborating in research before and so would not have been reached by any other means.

CONCLUSION

There are several approaches nurse researchers can take to convene a PPI group, including open forums and relevant charity groups. The authors' experience was broadly successful, although future research would involve collaboration with other teams to recruit more diverse groups.

IMPLICATIONS FOR PRACTICE

Nurse researchers are ideally placed to collaborate with patients and members of the public in designing and delivering research.

摘要

背景

近年来,患者和公众参与(PPI)在研究开发中的价值已变得明显。患者和服务使用者的见解对于成功开发和完成研究至关重要。PPI 合作可以提高研究的范围、质量、相关性和影响力。尽管如此,护士研究人员在确保将有效的 PPI 嵌入研究提案和实践中仍面临挑战。

目的

讨论发展 PPI 小组的实际方面,包括召集 PPI 小组的一种方法,并提供 PPI 小组如何改进和完善研究设计的示例。

讨论

直接邀请患者和公众成员参与研究,促成了成功的工作关系,并切实改进了研究方法。所接触的患者中没有一个人曾考虑过合作研究,因此无法通过任何其他方式联系到他们。

结论

护士研究人员可以采取几种方法召集 PPI 小组,包括开放论坛和相关慈善团体。作者的经验总体上是成功的,尽管未来的研究将涉及与其他团队合作,以招募更多样化的群体。

实践意义

护士研究人员最适合与患者和公众合作设计和提供研究。

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