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儿童癌症幸存者随访护理和研究的观点:2018 年京都 SIOP 专家会议国际调查问卷的结果。

Perspectives on follow-up care and research for childhood cancer survivors: results from an international SIOP meet-the-expert questionnaire in Kyoto, 2018.

机构信息

Princess Máxima Center for Pediatric Oncology, Utrecht, The Netherlands.

Department of Medicine, section Endocrinology, Erasmus University Medical Centre, Rotterdam, The Netherlands.

出版信息

Jpn J Clin Oncol. 2021 Oct 5;51(10):1554-1560. doi: 10.1093/jjco/hyab126.

DOI:10.1093/jjco/hyab126
PMID:34409997
Abstract

INTRODUCTION

Survival of childhood cancer has increased over the past decades. This has led to the development of strategies aiming to enhance follow-up care and research, for which priorities may vary globally. We explored perspectives of an international healthcare workers panel.

METHODS

Attendants of a meet-the-expert session on childhood cancer survivorship at the 2018 SIOP conference completed a survey about their view on important follow-up care and research aspects for survivors below and over 18 years. We analysed overarching categories and subtopics, and compared Asian versus European and North American healthcare workers.

RESULTS

A total of 58 participants from different medical specialties (67.2% paediatric oncologists) and continents (48.3% Asia, 39.7% Europe/North America) responded. Follow-up care priorities for survivors below and over 18 years included physical care (39.3% ≤18 years, 35.9% >18 years) and healthcare structure (29.4%, 26.0%). Physical care was also the most important research aspect for both age groups (52.5%, 50.7%). Psychological support was the most frequently reported subtopic. Asian clinicians (n = 22) primarily prioritized physical care aspects of follow-up care, whereas European/North American (n = 19) clinicians underscored the importance of healthcare structure.

CONCLUSION

Physical care is the most important aspect of survivorship care and research according to clinicians from several continents. Asian and European/North American respondents shared most priorities, however, healthcare structure was a more important category for European/North American clinicians. The most common subtopic was psychological support, underlining also the need to involve psychologists in follow-up.

摘要

简介

在过去几十年中,儿童癌症的存活率有所提高。这导致了旨在加强随访护理和研究的策略的发展,而这些策略的重点在全球可能有所不同。我们探讨了国际医疗保健工作者小组的观点。

方法

在 2018 年 SIOP 会议的儿童癌症生存专家会议上,与会者完成了一份关于他们对 18 岁以下和 18 岁以上幸存者重要随访护理和研究方面的看法的调查。我们分析了总体类别和子主题,并比较了亚洲、欧洲和北美的医疗保健工作者。

结果

共有来自不同医学专业(67.2%为儿科肿瘤学家)和各大洲(48.3%为亚洲,39.7%为欧洲/北美)的 58 名参与者做出了回应。18 岁以下和 18 岁以上幸存者的随访护理重点包括身体护理(39.3%≤18 岁,35.9%>18 岁)和医疗保健结构(29.4%,26.0%)。身体护理也是两个年龄组最重要的研究方面(52.5%,50.7%)。心理支持是报告最多的子主题。22 名亚洲临床医生(n=22)主要优先考虑随访护理的身体护理方面,而 19 名欧洲/北美临床医生(n=19)则强调了医疗保健结构的重要性。

结论

根据来自几个大洲的临床医生的说法,身体护理是生存护理和研究最重要的方面。亚洲和欧洲/北美受访者的优先事项大多相同,但医疗保健结构对欧洲/北美临床医生来说是一个更重要的类别。最常见的子主题是心理支持,这也强调了需要让心理学家参与到随访中来。

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