Lang Michael, Rau Daniela, Cepek Lukas, Cürten Fia, Ringbauer Stefan, Mayr Martin
NeuroPoint Patientenakademie, 89073 Ulm, Germany.
NeuroSys GmbH, 89081 Ulm, Germany.
Brain Sci. 2021 Aug 12;11(8):1061. doi: 10.3390/brainsci11081061.
Despite improvements in diagnosis and treatment, multiple sclerosis (MS) is the leading neurological cause of disability in young adults. As a chronic disease, MS requires complex and challenging management. In this context, eHealth has gained an increasing relevance. Here, we aim to summarize beneficial features of a mobile app recently implemented in clinical MS routine as well as beyond MS. PatientConcept is a CE-certified, ID-associated multilingual software application allowing patients to record relevant health data without disclosing any identifying data. Patients can voluntarily share their health data with selected physicians. Since its implementation in 2018, about 3000 MS patients have used PatientConcept. Initially developed as a physician-patient communication platform, the app maps risk management plans of all current disease modifying therapies and thereby facilitates adherence to specified monitoring appointments. It also allows continuous monitoring of various PROs (Patient Reported Outcomes), enabling a broad overview of the disease course. In addition, various studies/projects currently assess monitoring, follow-up, diagnostics and telemetric evaluations of patients with other diseases beyond MS. Altogether, PatientConcept offers a broad range of possibilities to support physician-patient communication, implementation of risk management plans and assessment of PROs. It is a promising tool to facilitate patient-tailored management of MS and other chronic diseases.
尽管在诊断和治疗方面有所改善，但多发性硬化症（MS）仍是年轻成年人致残的主要神经学原因。作为一种慢性疾病，MS需要复杂且具有挑战性的管理。在这种背景下，电子健康已变得越来越重要。在此，我们旨在总结最近在临床MS常规以及MS之外实施的一款移动应用程序的有益特性。PatientConcept是一款经过CE认证、与身份相关联的多语言软件应用程序，允许患者记录相关健康数据而无需披露任何身份识别数据。患者可以自愿与选定的医生共享他们的健康数据。自2018年实施以来，约3000名MS患者使用了PatientConcept。该应用程序最初是作为一个医患沟通平台开发的，它映射了所有当前疾病修正疗法的风险管理计划，从而促进对指定监测预约的依从性。它还允许对各种患者报告结局（PROs）进行持续监测，从而全面了解疾病进程。此外，目前各种研究/项目正在评估MS之外其他疾病患者的监测、随访、诊断和遥测评估。总体而言，PatientConcept提供了广泛的可能性来支持医患沟通、风险管理计划的实施以及PROs的评估。它是促进MS和其他慢性疾病的个性化患者管理的一个有前景的工具。
