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“如果没有这种支持,我就会放弃治疗了!”:在印度西部,一项探索社会支持对肺结核患者药物依从性作用的定性研究。

'If not for this support, I would have left the treatment!': Qualitative study exploring the role of social support on medication adherence among pulmonary tuberculosis patients in Western India.

机构信息

Population Health Sciences Department, Harrisburg University of Science and Technology, Harrisburg, USA.

Department of Nursing, Penn State College of Nursing, University Park, USA.

出版信息

Glob Public Health. 2022 Aug-Sep;17(9):1945-1957. doi: 10.1080/17441692.2021.1965182. Epub 2021 Aug 29.

DOI:10.1080/17441692.2021.1965182
PMID:34459366
Abstract

Social support has been identified as a significant factor in addressing treatment barriers and facilitating treatment adherence. Using a descriptive design, this qualitative study aims at sharing personal feelings and social support-related experiences among pulmonary tuberculosis (TB) patients in Western India. A semi-structured interview guide was designed, and thirty-seven in-depth interviews were conducted. Descriptive thematic analysis was employed for reporting the themes and the results. The participants highlighted diverse social support experiences like empathy, compassion, trust, neglect, tangible aid, strained relationships with in-laws, health provider's support, strength, and motivation which influences their treatment adherent behaviour. Contrasting differences of social support experiences among adherent and non-adherent TB patients were also reported. The study has important ramifications for developing patient-centric social support intervention strategies, TB policy, and practice. The study has shown, 'if not for this support', patients would have left the treatment, and it is mainly because this debilitating disease robs people of their physical, social, economic, psychological, and emotional well-being far beyond the period when treatment is being administered. However, we resonate that addressing social support is not the only way, and TB elimination overall will require an optimal mix of enhanced biomedical, social, economic, and policy interventions.

摘要

社会支持已被确定为解决治疗障碍和促进治疗依从性的重要因素。本研究采用描述性设计,旨在分享印度西部肺结核(TB)患者的个人感受和与社会支持相关的经验。设计了一份半结构化访谈指南,并进行了 37 次深入访谈。采用描述性主题分析报告主题和结果。参与者强调了各种社会支持体验,如同理心、同情、信任、忽视、有形援助、与姻亲的紧张关系、卫生保健提供者的支持、力量和动力,这些体验影响他们的治疗依从行为。还报告了依从性和非依从性肺结核患者之间社会支持体验的差异。该研究对制定以患者为中心的社会支持干预策略、结核病政策和实践具有重要意义。研究表明,“如果没有这些支持”,患者就会放弃治疗,而这主要是因为这种使人衰弱的疾病剥夺了人们的身体、社会、经济、心理和情感福祉,远远超出了治疗期间。然而,我们认识到,解决社会支持问题并不是唯一的途径,要实现结核病的消除,需要综合强化生物医学、社会、经济和政策干预措施。

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