Health Outcomes Division and Texas Center for Health Outcomes Research & Education (TxCORE), College of Pharmacy, University of Texas at Austin.
J Manag Care Spec Pharm. 2021 Sep;27(9-a Suppl):S19-S23. doi: 10.18553/jmcp.2021.27.9-a.s19.
"It's Time to Represent" integrates 2 strategies that challenge the status quo to increase the diversity of populations that participate in research and address drivers of health disparities to better inform value assessment. The first, a community-engaged campaign, proposes to develop authentic, long-term partnerships with community members, their health care providers, and researchers to tailor recruitment and retention methods for underrepresented groups and hold researchers accountable for equitable selection of study participants. The second proposes to create an expectation for researchers to routinely collect patient-reported, actionable social determinants of health data to generate enhanced real-world evidence and thereby improve the quality of inputs utilized in value assessment frameworks. No specific funding was received for this manuscript. The authors report no potential conflicts of interest.
“是时候代表了”整合了 2 种策略，旨在挑战现状，增加参与研究的人群的多样性，并解决健康差异的驱动因素，以更好地为价值评估提供信息。第一种策略是社区参与运动，提议与社区成员、他们的医疗保健提供者和研究人员建立真实的、长期的伙伴关系，针对代表性不足的群体制定招聘和保留方法，并要求研究人员对研究参与者的公平选择负责。第二种策略提议创建一种期望，即要求研究人员定期收集可操作的患者报告的健康社会决定因素数据，以生成增强的真实世界证据，从而提高价值评估框架中使用的投入质量。 本文没有收到特定的资金支持。作者报告没有潜在的利益冲突。
