Mills Denise, Zupanec Sue, Breakey Vicky, Chakkalackal Lauren, Cook Sadie, Cox Stephanie, Gibson Paul, Punnett Angela, Sung Lillian
Author Affiliations: Division of Haematology/Oncology, The Hospital for Sick Children Toronto (Mss Mills and Zupanec, and Drs Punnet and Sung); Department of Pediatric Hematology/Oncology, McMaster Children's Hospital - Hamilton Health Sciences (Drs Breakey and Gibson, and Ms Cox); and Program in Child Health Evaluative Sciences, The Hospital for Sick Children, Peter Gilgan Centre for Research and Learning (Mss Chakkalackal and Cook, and Dr Sung), Toronto, Ontario, Canada.
Cancer Nurs. 2022;45(2):E428-E435. doi: 10.1097/NCC.0000000000000962.
Parents of children newly diagnosed with cancer are required to understand a significant amount of new information during a time of distress. Parents of children with cancer have expressed that concise information with visual cues, which can be repeated, positively influences their ability to understand.
The primary objective was to develop 2 concise, video-based education modules that are understandable to parents of children with cancer. A secondary objective was to determine feasibility of a future trial evaluating efficacy of video-based education.
The study was conducted in phases: script development, video creation, and feasibility testing. Topics were "managing fever at home" and "giving medications at home." Content was developed by pediatric oncology experts and turned into video scripts. Scripts were refined through cognitive interviews with parents of children with cancer. Feasibility testing included recruitment of 20 parents of a child given a diagnosis of cancer within 4 weeks. Parents watched both videos and answered questions that assessed their understanding and perceived confidence.
Final scripts were reviewed by 25 participants. Feasibility was achieved with 20 parents recruited within 7 weeks, with 100% watching both videos and answering knowledge and confidence questions.
We successfully developed 2 educational videos for parents of children newly diagnosed with cancer. A future trial to test the efficacy of video-based education modules is feasible.
Delivering quality education to parents of children newly diagnosed with cancer can decrease parental distress and improve safe care during a high-risk time for treatment-related morbidity and mortality.
新诊断出患癌儿童的父母需要在痛苦时期理解大量新信息。患癌儿童的父母表示，带有视觉提示且可重复的简洁信息能积极影响他们的理解能力。
主要目的是开发两个简洁的、基于视频的教育模块，以供患癌儿童的父母理解。次要目的是确定未来评估基于视频教育效果的试验的可行性。
该研究分阶段进行：脚本开发、视频制作和可行性测试。主题为“在家处理发热”和“在家给药”。内容由儿科肿瘤专家编写并转化为视频脚本。通过与患癌儿童的父母进行认知访谈对脚本进行完善。可行性测试包括招募20名在4周内其孩子被诊断患有癌症的父母。父母观看两个视频并回答评估他们理解程度和感知信心的问题。
25名参与者对最终脚本进行了审核。在7周内招募到20名父母从而实现了可行性，100%的父母观看了两个视频并回答了知识和信心问题。
我们成功为新诊断出患癌儿童的父母开发了两个教育视频。未来测试基于视频教育模块效果的试验是可行的。
为新诊断出患癌儿童的父母提供高质量教育可以减轻父母的痛苦，并在与治疗相关的发病率和死亡率的高风险时期改善安全护理。
