Fernández Adriana, Desantadina Virginia, Balacco Martín, Busoni Verónica, Cabral Ana, Cosentino Sandra, Dalieri Marcela, Dlugozewski Corina, Fabeiro Marcela, Fain Humberto, Hassan Amal S, Martínez M Inés, Martínez Sonia, Saure Carola, Sosa Patricia, Strasnoy Irene, Rumbo Carolina, Vagni Rosana
Hospital Interzonal de Agudos Especializado en Pediatría (HIAEP) Sor María Ludovica, La Plata, Argentina.
Hospital Interzonal Especializado Materno Infantil (HIEMI), Mar del Plata, Argentina.
Arch Argent Pediatr. 2021 Oct;119(5):e441-e472. doi: 10.5546/aap.2021.e441.
Intestinal failure secondary to short bowel syndrome in pediatrics, is a rare condition with high morbimortality. A follow up multidisciplinary team is necessary to minimize complications and optimize the intestinal rehabilitation. There are no gold standard guidelines for the management of this group of complex patients. The development of clinical guidelines may contribute for an adequate management of patients with intestinal failure and short bowel syndrome. This Clinical Guideline for the Management was developed by 16 experts based on modified Delphi methodology. The meetings were held at the Argentinian Association of Enteral and Parenteral Nutrition (Asociación Argentina de Nutrición Enteral y Parenteral); the topics analyzed were definitions, epidemiology, enteral and parenteral nutrition, pharmacological and surgical treatments, and criteria for referring patients to intestinal rehabilitation centers. The document is aimed to provide basic scientific knowledge for medical institutions, health providers, healthcare providers, patients and families.
小儿短肠综合征继发的肠衰竭是一种罕见疾病,病死率高。需要一个多学科随访团队来尽量减少并发症并优化肠道康复。对于这类复杂患者的管理,目前尚无金标准指南。临床指南的制定可能有助于对肠衰竭和短肠综合征患者进行适当管理。本管理临床指南由16位专家基于改良德尔菲法制定。会议在阿根廷肠内和肠外营养协会召开;分析的主题包括定义、流行病学、肠内和肠外营养、药物和手术治疗,以及将患者转诊至肠道康复中心的标准。该文件旨在为医疗机构、卫生服务提供者、医疗保健提供者、患者及其家属提供基础科学知识。