Spitzer Kerry A, Heineman Brent, Jewell Marcella, Moran Michael, Lindenauer Peter K
Institute for Healthcare Delivery and Population Science, University of Massachusetts Medical School-Baystate, Springfield, MA, United States.
University of Connecticut School of Medicine, Farmington, CT, United States.
JMIR Form Res. 2021 Sep 30;5(9):e24005. doi: 10.2196/24005.
Asthma is a chronic lung disease that affects nearly 25 million individuals in the United States. More research is needed into the potential for health care providers to leverage existing social media platforms to improve healthy behaviors and support individuals living with chronic health conditions.
In this study, we assessed the willingness of Instagram users with poorly controlled asthma to participate in a pilot randomized controlled trial that will use Instagram as a means of providing social and informational support. In addition, we explored the potential for adapting the principles of photovoice and digital storytelling to Instagram.
We conducted a survey study of Instagram users aged 18-40 years with poorly controlled asthma in the United States.
Over 3 weeks of recruitment, 457 individuals completed the presurvey screener; 347 (75.9%) were excluded and 110 (24.1%) were eligible and agreed to participate in the study. Of the 110 individuals, 82 (74.5%) completed the study survey. The mean age of the respondents was 21 (SD 5.3) years. Among respondents, 56% (46/82) were female, 65% (53/82) were non-Hispanic White, and 72% (59/82) had at least some college education. The majority of respondents (67/82, 82%) indicated that they would be willing to participate in the proposed study.
Among young adult Instagram users with asthma, there is substantial interest in participating in a pilot randomized controlled trial that will use Instagram to connect participants with peers and a health coach to share information about self-management of asthma and build social connection.
哮喘是一种慢性肺部疾病，在美国影响着近2500万人。医疗保健提供者利用现有社交媒体平台改善健康行为并支持慢性病患者的潜力，还需要更多研究。
在本研究中，我们评估了哮喘控制不佳的Instagram用户参与一项试点随机对照试验的意愿，该试验将利用Instagram提供社交和信息支持。此外，我们还探讨了将照片声音和数字故事讲述的原则应用于Instagram的潜力。
我们对美国18至40岁、哮喘控制不佳的Instagram用户进行了一项调查研究。
在为期3周的招募过程中，457人完成了预调查筛选；347人（75.9%）被排除，110人（24.1%）符合条件并同意参与研究。在这110人中，82人（74.5%）完成了研究调查。受访者的平均年龄为21岁（标准差5.3）。在受访者中，56%（46/82）为女性，65%（53/82）为非西班牙裔白人，72%（59/82）至少接受过一些大学教育。大多数受访者（67/82，82%）表示愿意参与拟议的研究。
在患有哮喘的年轻成年Instagram用户中，对参与一项试点随机对照试验有浓厚兴趣，该试验将利用Instagram将参与者与同龄人以及健康教练联系起来，分享哮喘自我管理信息并建立社交联系。
