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慢性拉斯穆森脑炎患者的神经康复:一例报告

Neurological rehabilitation for a patient with chronic Rasmussen encephalitis: a case report.

作者信息

Sousa Nariana Mattos Figueiredo, Ribeiro Aidê Mascarenhas, Nunes Daniela Lino de Macedo

机构信息

Neurological Rehabilitation Program, Rede SARAH de Hospitais de Reabilitação - Salvador, BA, Brazil.

出版信息

Dement Neuropsychol. 2021 Jul-Sep;15(3):413-418. doi: 10.1590/1980-57642021dn15-030015.

Abstract

Rasmussen encephalitis is a rare disease consisting of a chronic, slowly progressive inflammatory reaction of brain tissues. The objective of this study was to describe the case of an 18-year-old female patient, studying on the fourth grade of elementary school, and right-handed, who underwent left hemispherectomy in a neurological rehabilitation program. Her seizures began at 10 years of age and were unresponsive to drug treatment, with functional repercussions. She underwent hemispherectomy in March 2019, with 7 years of ongoing disease, and was admitted for the rehabilitation program with a multidisciplinary team in June 2020. The quality-of-life questionnaire (WHOQOL-BREF) was applied as a comparison measure before and after the rehabilitation program, along with measures of participation on the program activities. Despite the patient's short time in a rehabilitation program, data show the importance of an interdisciplinary intervention through the establishment of specific and contextualized objectives in chronic patients.

摘要

拉斯穆森脑炎是一种罕见疾病,由脑组织的慢性、缓慢进展性炎症反应组成。本研究的目的是描述一名18岁女性患者的病例,该患者正在小学四年级就读,惯用右手,在神经康复项目中接受了左半球切除术。她的癫痫发作始于10岁,对药物治疗无反应,并产生了功能影响。她于2019年3月接受了半球切除术,患病7年,2020年6月因康复项目被多学科团队收治入院。在康复项目前后应用了生活质量问卷(WHOQOL-BREF)作为比较指标,同时还测量了参与项目活动的情况。尽管患者参与康复项目的时间较短,但数据显示了通过为慢性病患者设定具体和情境化目标进行跨学科干预的重要性。

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