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老年长期乳腺癌幸存者心理调适与生活质量的意义建构

Meaning Making for Psychological Adjustment and Quality of Life in Older Long-Term Breast Cancer Survivors.

作者信息

Nilsen Marianne, Stalsberg Ragna, Sand Kari, Haugan Gørill, Reidunsdatter Randi Johansen

机构信息

Department of Social Work, Norwegian University of Science and Technology (NTNU), Trondheim, Norway.

Department of Circulation and Medical Imaging, Norwegian University of Science and Technology (NTNU), Trondheim, Norway.

出版信息

Front Psychol. 2021 Sep 28;12:734198. doi: 10.3389/fpsyg.2021.734198. eCollection 2021.

Abstract

This study aims to explore in depth the meaning and meaning discrepancies among older Norwegian breast cancer survivors in light of the meaning making model by Park (2013). We utilized a qualitative design collecting data using semi-structured interviews of 23 elderly breast cancer survivors 7-8 years after treatment. The interviews followed an interview guide structured along three main themes: "everyday life activities," "follow-up-care experiences" and "health status and QoL." Several health problems were reported by the women in the aftermaths of the disease, such as sleeping problems, pain, and fatigue-including cognitive and emotional impairments. Meaning discrepancies were concentrated on six main themes: shifting perspectives and priorities, growing sense of autonomy, widening the limits of normality, dissociating oneself from the disease, embracing alternative health services, and feeling lucky. The women engaged in a wide range of coping techniques as efforts to change global meaning, and to develop a more positive view on the cancer experience. Common coping efforts across the six main themes were social comparison, denial, positive reappraisal, problem-focused coping, and revaluing ordinary events. Many cancer patients report on unmet needs for help with their meaning making, and the facilitation of meaning making processes is rarely included in the follow-up care of cancer survivors. The findings of the present study may help health care professionals provide care for women who have experienced breast cancer. The concrete knowledge of common coping efforts in the meaning making process may contribute to the development of future interventions and for gaining a deeper understanding for older survivors of breast cancer.

摘要

本研究旨在依据帕克(2013年)的意义构建模型,深入探究挪威老年乳腺癌幸存者之间的意义及意义差异。我们采用定性设计,在治疗7至8年后,通过对23名老年乳腺癌幸存者进行半结构化访谈来收集数据。访谈遵循一份访谈指南,该指南围绕三个主要主题构建:“日常生活活动”“后续护理经历”以及“健康状况与生活质量”。这些女性在患病后报告了多种健康问题,诸如睡眠问题、疼痛以及疲劳——包括认知和情感障碍。意义差异集中在六个主要主题上:视角与优先事项的转变、自主意识的增强、正常范围的拓宽、与疾病的解离、接受替代健康服务以及感到幸运。这些女性采用了广泛的应对技巧,作为改变整体意义以及对癌症经历形成更积极看法的努力。六个主要主题中常见的应对努力包括社会比较、否认、积极重新评价、以问题为导向的应对以及对平常事件的重新评估。许多癌症患者报告在意义构建方面的帮助需求未得到满足,并且意义构建过程的促进在癌症幸存者的后续护理中很少被纳入。本研究的结果可能有助于医护人员为经历过乳腺癌的女性提供护理。在意义构建过程中常见应对努力的具体知识可能有助于未来干预措施的发展,并有助于更深入地理解老年乳腺癌幸存者。

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本文引用的文献

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Social Comparison and Stress Appraisal in Women with Chronic Illness.慢性疾病女性的社会比较和压力评估。
Int J Environ Res Public Health. 2021 May 20;18(10):5483. doi: 10.3390/ijerph18105483.
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Decreased Autonomy In Community-Dwelling Older Adults.社区居住的老年人自主性降低。
Clin Interv Aging. 2019 Nov 18;14:2041-2053. doi: 10.2147/CIA.S225479. eCollection 2019.
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Trajectories of quality of life following breast cancer diagnosis.乳腺癌诊断后的生活质量轨迹。
Breast Cancer Res Treat. 2018 May;169(1):163-173. doi: 10.1007/s10549-018-4677-2. Epub 2018 Jan 24.

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