Pakseresht Maryam, Rassouli Maryam, Rejeh Nahid, Rostami Shahnaz, Barasteh Salman, Molavynejad Shahram
School of Nursing and Midwifery, Ilam University of Medical Sciences, Ilam, Iran.
Cancer Research Center, Shahid Beheshti University of Medical Sciences, Tehran, Iran.
Front Psychol. 2021 Oct 18;12:750838. doi: 10.3389/fpsyg.2021.750838. eCollection 2021.
The experience of bereavement is associated with severe physical, psychological, social and spiritual reactions in the parents of children with cancer. Because of that, the families of these children need to receive bereavement services. The aim of this study was to explore the bereavement needs of families of children with cancer from the perspective of health caregiver as people who have a close relationship with the child and the family. This qualitative descriptive study design in. In total 15 semi-structured interviews were conducted using a purposive sampling in 2018. Interviews were recorded and transcribed and conventional content analysis was used to analysis the data. The Trustworthiness of the data were assessed according to the criteria of Lincoln and Guba. From the data analysis, needs of the bereaved family were categorized in three dimension including "achieving peace," "Abandoned family access to care," and "continuing care." The category of "achieving peace" includes spiritual and existential support, companionship with the family, contact with other bereaved families, support in passing and accepting the bereaved and continuing empathetic communication with the family, the category "Abandoned family access to care" includes the promotion of family self-control, awareness of end-of-life care to the family, and the category of "continuing care," includes formal and informal family care and individualized care. It is necessary for the care team to pay special focus to family considering the needs of the family about the death of the patient and the challenges of the family bereavement period. It is recommended that members of the health care team should be trained in assessing family needs, identifying risks of adverse outcomes, continuing care, and providing resources during bereavement. The needs of the bereaved family should also be addressed in their care plan.
丧亲之痛的经历与癌症患儿父母严重的身体、心理、社会和精神反应相关。正因如此,这些患儿的家庭需要接受丧亲服务。本研究的目的是从作为与患儿及其家庭关系密切的健康照护者的角度,探讨癌症患儿家庭的丧亲需求。本研究采用定性描述性研究设计。2018年,通过立意抽样共进行了15次半结构式访谈。访谈进行了录音和转录,并采用传统内容分析法对数据进行分析。根据林肯和古巴的标准评估数据的可信度。通过数据分析,丧亲家庭的需求被分为三个维度,包括“实现安宁”“让被遗弃家庭获得照护”和“持续照护”。“实现安宁”类别包括精神和生存支持、陪伴家庭、与其他丧亲家庭联系、在度过和接受丧亲之痛方面提供支持以及与家庭持续进行共情沟通;“让被遗弃家庭获得照护”类别包括促进家庭自我控制、让家庭了解临终照护;“持续照护”类别包括正式和非正式的家庭照护以及个性化照护。考虑到家庭对患者死亡的需求以及家庭丧亲期间的挑战,照护团队有必要特别关注家庭。建议对医疗团队成员进行培训,使其能够评估家庭需求、识别不良后果风险、提供持续照护以及在丧亲期间提供资源。丧亲家庭的需求也应在其照护计划中得到解决。