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腭裂患儿家长对言语治疗提供模式的看法:一项混合方法研究。

Parents' perceptions on speech therapy delivery models in children with a cleft palate: A mixed methods study.

作者信息

Alighieri Cassandra, Bettens Kim, Vanoost Laure, Demuynck Kris, Verhaeghe Sofie, Van Lierde Kristiane

机构信息

Department of Rehabilitation Sciences, Ghent University, Corneel Heymanslaan 10, 2P1, 9000, Gent, Belgium.

Department of Rehabilitation Sciences, Ghent University, Corneel Heymanslaan 10, 2P1, 9000, Gent, Belgium.

出版信息

Int J Pediatr Otorhinolaryngol. 2021 Dec;151:110958. doi: 10.1016/j.ijporl.2021.110958. Epub 2021 Oct 27.

DOI:10.1016/j.ijporl.2021.110958
PMID:34736010
Abstract

PURPOSE

This study investigated parents' perceptions on two different speech therapy delivery models in children with a CP ± L, namely an innovative high intensity speech intervention (i.e. HISI: 10 1-h sessions divided over 2 weeks) and a low intensity speech intervention (i.e. LISI: 10 1-h sessions divided over 10 weeks).

METHOD

Twelve parents of 12 children who received HISI (n = 6) or LISI (n = 6) were contacted with the request to participate to this study to review their opinion on the received therapy. Participation included the completion of a questionnaire containing items related to satisfaction, speech progress, intervention intensity and frequency, transfer, and need for further speech therapy. Additionally, semi-structured interviews were carried out. The interviews were analyzed using an inductive thematic approach.

RESULTS

There were no significant differences between the two groups in satisfaction with the "general speech therapy, "duration of one speech therapy session", "total intervention duration" and "degree of improvement of speech intelligibility". Following HISI, parents perceived more improvement in terms of spontaneous speech and better resolution of the speech disorders. The interviews revealed 3 themes of importance to the parents: (1) treatment-related expectations, (2) treatment-related burden, and (3) patient-therapist relationship. Parents in the HISI group reported two concerns: (1) the lack of variation when receiving daily intervention, and (2) the emotional burden when the child is confronted with his/her speech disorder on a daily basis.

CONCLUSIONS

Parents were equally satisfied with the provided intervention. Parents in the HISI group perceived more speech progress following the intervention compared to parents in the LISI group. The intensive contact with the speech pathologist enhanced the patient-therapist relationship. To support a cultural shift away from low intensity therapy delivery models, it will be important to counsel and inform parents of the benefits of HISI and to counterbalance concerns.

摘要

目的

本研究调查了家长对两种不同言语治疗模式在伴有或不伴有听力损失的脑瘫儿童中的看法,即创新的高强度言语干预(即HISI:10次1小时的治疗课程,分2周进行)和低强度言语干预(即LISI:10次1小时的治疗课程,分10周进行)。

方法

联系了12名接受HISI(n = 6)或LISI(n = 6)治疗的儿童的12名家长,请求他们参与本研究,以回顾他们对所接受治疗的意见。参与包括完成一份问卷,其中包含与满意度、言语进展、干预强度和频率、迁移以及进一步言语治疗需求相关的项目。此外,还进行了半结构化访谈。访谈采用归纳主题法进行分析。

结果

两组在对“一般言语治疗”、“一次言语治疗课程的时长”、“总干预时长”和“言语可懂度的改善程度”的满意度方面没有显著差异。接受HISI治疗后,家长认为在自发言语方面有更多改善,言语障碍的解决情况更好。访谈揭示了对家长重要的3个主题:(1)与治疗相关的期望,(2)与治疗相关的负担,(3)患者与治疗师的关系。HISI组的家长报告了两个担忧:(1)接受每日干预时缺乏变化,(2)孩子每天面对自己的言语障碍时的情感负担。

结论

家长对所提供的干预同样满意。与LISI组的家长相比,HISI组的家长在干预后认为言语进展更多。与言语病理学家的密集接触增强了患者与治疗师的关系。为支持从低强度治疗模式的文化转变,向家长咨询并告知他们HISI的益处以及平衡担忧将很重要。

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