Department of Allied Health Professions, Midwifery and Social Work, School of Health and Social Work, University of Hertfordshire, College Lane Campus, Hatfield, Hertfordshire, AL10 9AB, UK; Connect Health, The Light Box, Quorum Park, Benton Lane, Newcastle Upon Tyne, Tyne and Wear, NE12 8EU, UK.
Sports and Exercise Medicine, School of Medicine and Dentistry, William Harvey Research Institute, Queen Mary University London, Mile End Hospital, Bancroft Road, London, E1 4DG, UK; Pure Sports Medicine, Point West Building, 116 Cromwell Road, London, SW7 4XR, UK.
Musculoskelet Sci Pract. 2022 Feb;57:102473. doi: 10.1016/j.msksp.2021.102473. Epub 2021 Oct 28.
Patellofemoral pain (PFP) is common and long-term treatment outcomes are unsatisfactory. Qualitative exploration of diagnosis and management from the perspective of people with PFP is lacking.
To inform care and improve intervention delivery by exploring the experience of people with PFP regarding diagnosis and management.
Qualitative study with semi-structured interviews.
Online recruiting yielded a convenience sample of participants with PFP for semi-structured interview. Interviews were recorded, transcribed verbatim, and analysed using thematic analysis until theoretical saturation by multiple investigators to determine themes and sub-themes.
12 participants were interviewed, with three themes identified; the value of diagnosis, the need for tailored (individualised) care, and the role of education. Participants viewed receiving a diagnosis as essential to guide management, yet one was rarely provided, causing uncertainty about pain mechanisms; "it's nice to be told what it is that's wrong". Interventions needed to be tailored to the individual as not all participants responded in the same way to treatment(s) or had the same needs; "everyone copes and reacts differently". Finally, participants viewed education as essential to empower them to understand and manage the condition; "if I'd have been given more information, I think I'd know how to deal with it more".
The overarching narrative from three themes was a desire for clearly communicated personalised care that meets individual needs. People with PFP desire a diagnosis to explain their pain, tailored interventions, and appropriate education to optimise their experience and outcomes.
髌股疼痛（PFP）较为常见，且长期治疗效果并不理想。从 PFP 患者的角度对其诊断和管理进行定性探索较为缺乏。
通过探索 PFP 患者对诊断和管理的体验，为护理提供信息并改善干预措施的实施。
半结构式访谈的定性研究。
在线招募 PFP 患者进行半结构式访谈，获得方便样本。对访谈进行录音、逐字转录，并采用主题分析进行分析，由多位研究者进行多次分析，以确定主题和子主题。
对 12 名参与者进行了访谈，确定了 3 个主题：诊断的价值、个性化护理的需求以及教育的作用。参与者认为获得诊断对于指导管理至关重要，但很少提供诊断，导致对疼痛机制存在不确定性；“知道自己哪里出了问题是很好的。”干预措施需要针对个体进行定制，因为并非所有参与者对治疗（或相同的需求）都有相同的反应；“每个人的应对方式和反应都不同。”最后，参与者认为教育对于赋予他们理解和管理病情的能力至关重要；“如果我能得到更多的信息，我想我会知道如何更好地应对。”
三个主题的总体叙述是希望得到沟通明确的个性化护理，以满足个人的需求。PFP 患者希望得到一个能解释他们疼痛的诊断，提供个性化的干预措施，并接受适当的教育，以优化他们的体验和结果。
