Daphne Cockwell School of Nursing, 7984Ryerson University, Toronto, Ontario, Canada.
Can J Nurs Res. 2022 Dec;54(4):474-482. doi: 10.1177/08445621211037476. Epub 2021 Nov 6.
Most persons with substance use disorder (SUD) live in family settings. In the absence of adequate mental health services, mothers are often called upon to provide care for their adult children with SUD. Despite positive outcomes such as decreased rates of hospitalization associated with family involvement, mothers are often stigmatized within the health care systems as contributors to trauma and/or family dysfunction.
The purpose of this study is to explore mothers' lived experience of caring for adult children with SUD.
Guided by critical feminist theory, this study used interpretive descriptive qualitative research design to identify patterns within mothers' experiences for practical relevance and application to service provision.
The findings yielded in this study identified mothers' experiences as: longing for wellness, identity as loving mother, loss, anticipatory grief, shame and blame and feeling excluded from services. Ultimately, the findings from this study extend the limited research to date on mothers' experiences of stigma, especially when they are blamed for their child's illness.
Findings from this study advocate for family-centered approaches that attend to mothers' unique experience, from their standpoint, and offer recommendations for change to service provision.
大多数物质使用障碍（SUD）患者都生活在家庭环境中。在缺乏足够的心理健康服务的情况下，母亲经常被要求照顾患有 SUD 的成年子女。尽管家庭参与会带来降低住院率等积极结果，但母亲在医疗保健系统中经常因造成创伤和/或家庭功能障碍而受到污名化。
本研究旨在探讨母亲照顾患有 SUD 的成年子女的生活体验。
本研究以批判女性主义理论为指导，采用解释性描述质性研究设计，以确定母亲经验中的模式，以实现实践相关性和服务提供的应用。
本研究的结果确定了母亲的体验如下：渴望健康、作为慈爱的母亲的身份、失落、预期性悲伤、羞耻和责备以及感到被服务排斥。最终，本研究的结果扩展了迄今为止对母亲因耻辱感而经历的有限研究，特别是当她们因孩子的疾病而受到指责时。
本研究的结果主张采取以家庭为中心的方法，从母亲的角度关注她们的独特体验，并为服务提供提出变革建议。
