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努力实现包容:为有轻度认知障碍或痴呆症且正在工作的人开发技术,并与他们合作开发技术。

Working towards inclusion: Creating technology for and with people living with mild cognitive impairment or dementia who are employed.

机构信息

8430University of Waterloo, Canada.

8430University of Waterloo, Canada; Research Institute for Aging, Canada.

出版信息

Dementia (London). 2022 Feb;21(2):556-578. doi: 10.1177/14713012211051885. Epub 2021 Nov 8.

DOI:10.1177/14713012211051885
PMID:34749536
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8811323/
Abstract

Earlier diagnosis and longer working careers is resulting in more individuals being identified as having Mild Cognitive Impairment or Early Onset Dementia (MCI/EOD) when they are still in the workforce. While there is growing interest in the dementia research community and beyond to develop technologies to support people with dementia, the use of technology for and by people with MCI/EOD in the workplace has had very little attention. This paper presents a two-part study involving interviews and participatory sessions to begin to understand the workplace experiences and the role of technology among people living with MCI/EOD. We present our findings from working with seven people with MCI/EOD and two care partners to explore technology design. Our results indicate several similarities as well as a few differences between MCI/EOD and later-onset dementia with respect to challenges using technology and design considerations for supporting engagement and use of technology. Lessons learned through the process of working with people with MCI/EOD through participatory methods is presented along with recommendations to foster an inclusive, respectful, and empowering experience for participants with MCI/EOD.

摘要

早期诊断和更长的工作生涯导致更多的人在工作场所被确定为患有轻度认知障碍或早期发病痴呆症(MCI/EOD)。尽管痴呆症研究界和其他领域越来越有兴趣开发技术来支持痴呆症患者,但在工作场所中,MCI/EOD 患者对技术的使用和应用却很少受到关注。本文介绍了一项涉及访谈和参与式会议的两部分研究,旨在开始了解 MCI/EOD 患者的工作场所体验和技术的作用。我们展示了与七名 MCI/EOD 患者和两名护理合作伙伴合作的研究结果,以探讨技术设计。我们的研究结果表明,在使用技术和设计考虑因素以支持参与和使用技术方面,MCI/EOD 与后期发病的痴呆症之间存在一些相似之处和一些差异。我们通过参与式方法与 MCI/EOD 患者合作的过程中获得了经验教训,并提出了一些建议,以促进 MCI/EOD 患者的包容性、尊重性和赋权体验。

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本文引用的文献

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Selecting apps for people with mild dementia: Identifying user requirements for apps enabling meaningful activities and self-management.为轻度痴呆症患者选择应用程序:确定有助于开展有意义活动和自我管理的应用程序的用户需求。
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Defeating Alzheimer's disease and other dementias: a priority for European science and society.
战胜阿尔茨海默病及其他痴呆症:欧洲科学与社会的当务之急。
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What are the experiences of people with dementia in employment?患有痴呆症的人在就业方面有哪些经历?
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Cognitive impairment in older workers--a guide to assessment.老年工作者的认知障碍——评估指南
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