埃及儿科肿瘤家庭护理提供者对姑息治疗的认知及其感知到的障碍

Perception of pediatric oncology family care providers toward palliative care and its perceived barriers in Egypt.

作者信息

Mohamed Magda Aly, Ibrahim Ateya Megahed, Ibrahim Hanaa Mohamed, Abdella Nabila, Elmowafy Reda Ibrahim

机构信息

Department of Family and Community Health Nursing, Faculty of Nursing, Port Said University, Port Said, Egypt.

Department of Pediatric Nursing, Faculty of Nursing, Port Said University, Port Said, Egypt.

出版信息

Palliat Support Care. 2022 Feb;20(1):55-61. doi: 10.1017/S1478951521001668.

DOI:10.1017/S1478951521001668

PMID:34763743

Abstract

BACKGROUND

Palliative care is comprehensive supportive care addressing the suffering, pain, discomfort, symptoms, and stress of cancer and any serious life-threatening disease. It is a key part of care for our children living with cancer and is an important source of support for their families. The study aimed to assess the perception of pediatric oncology family care providers toward palliative care and its perceived barriers in Egypt.

METHOD

Total number of 500 oncology children's family care providers was recruited. A descriptive research design was utilized. Researchers used three tools as Structured Interview Questionnaire to assess the participants' knowledge and perceived barriers, Attitude toward palliative care Likert Scale, and Reported Practices Observational Checklist. The study was conducted in outpatient cancer clinics affiliated with El-Nasr governmental hospital located at Port Said governorate.

RESULTS

51.8% of the total oncology children's family care providers had sufficient knowledge, 78.6% had a positive attitude, while,76.8% of them had inappropriate Practice towards palliative care.

SIGNIFICANCE OF RESULTS

The pediatric oncology family care providers had sufficient knowledge and a positive attitude toward palliative care, but their practices were inappropriate. Also, the majority of participants identified Lack of family care providers training in pediatric palliative care and improper communication between the health team and family care providers as the main barriers to providing palliative care to children. Providing a palliative care training program for family caregivers through continuing professional development is highly recommended besides further research studies using large probability samples at different settings.

摘要

背景

姑息治疗是一种全面的支持性护理，旨在解决癌症及任何严重危及生命疾病所带来的痛苦、疼痛、不适、症状和压力。它是关爱患癌儿童护理工作的关键部分，也是为其家庭提供支持的重要来源。本研究旨在评估埃及儿科肿瘤家庭护理提供者对姑息治疗的认知及其所感知到的障碍。

方法

招募了500名肿瘤患儿的家庭护理提供者。采用描述性研究设计。研究人员使用了三种工具，即结构化访谈问卷来评估参与者的知识和感知到的障碍、姑息治疗态度李克特量表以及报告实践观察清单。该研究在位于塞得港省的纳斯尔政府医院附属的门诊癌症诊所进行。

结果

在所有肿瘤患儿的家庭护理提供者中，51.8%有足够的知识，78.6%态度积极，然而，76.8%的人在姑息治疗方面实践不当。

结果的意义

儿科肿瘤家庭护理提供者对姑息治疗有足够的知识和积极的态度，但他们的实践是不恰当的。此外，大多数参与者认为儿科姑息治疗中家庭护理提供者缺乏培训以及医疗团队与家庭护理提供者之间沟通不当是为儿童提供姑息治疗的主要障碍。除了在不同环境下使用大概率样本进行进一步的研究外，强烈建议通过持续专业发展为家庭护理者提供姑息治疗培训项目。