Desimone Marisa E, Sherwood Jordan, Soltman Sarah C, Moran Antoinette
Division of Endocrinology, Diabetes and Metabolism, State University of New York at Upstate Medical University 750 East Adams Street, Syracuse, NY 13210, USA.
Division of Pediatric Endocrinology, Massachusetts General Hospital, 55 Fruit Street, Boston, MA 02114, USA.
J Clin Transl Endocrinol. 2021 Oct 26;26:100270. doi: 10.1016/j.jcte.2021.100270. eCollection 2021 Dec.
Cystic Fibrosis (CF) requires lifetime multidisciplinary care to manage both pulmonary and extra pulmonary manifestations. The median age of survival for people with CF is rising and the number of adults with CF is expected to increase dramatically over the coming years. People with CF have better outcomes when managed in specialty centers, however access can be limited. Telemedicine and technology-based care solutions may help to overcome barriers to availability and improve access. This review outlines the use of telehealth for CF management. Telehealth has been utilized for CF across a broad variety of indications, even prior to the COVID-19 pandemic, and in general has been well accepted by patients and providers. There are a paucity of data, however, related to health outcomes, and the healthcare utilization specific to CF and its related comorbidities. Future studies are needed to address the questions of health outcomes, cost, burdens of telehealth and barriers to implementation.
囊性纤维化（CF）患者需要终身接受多学科护理，以管理肺部和肺外表现。CF患者的中位生存年龄正在上升，预计未来几年成年CF患者的数量将大幅增加。CF患者在专科中心接受治疗时预后较好，但就诊机会可能有限。远程医疗和基于技术的护理解决方案可能有助于克服可及性障碍并改善就诊机会。本综述概述了远程医疗在CF管理中的应用。即使在新冠疫情之前，远程医疗就已在广泛的适应症中用于CF，总体上已被患者和医疗服务提供者广泛接受。然而，与健康结局以及CF及其相关合并症的特定医疗利用相关的数据很少。未来需要开展研究，以解决健康结局、成本、远程医疗负担和实施障碍等问题。
