Cincinnati Comprehensive Sickle Cell Center, Division of Hematology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH 45229, USA.
Department of Pediatrics, College of Medicine, University of Cincinnati, Cincinnati, OH 45229, USA.
Int J Environ Res Public Health. 2021 Nov 5;18(21):11641. doi: 10.3390/ijerph182111641.
Sickle cell disease (SCD) is a rare blood disorder that can have life-threatening complications. This presents a challenge for school nurses who may have had limited experience managing complications in the school setting. This study assessed the experience, self-reported knowledge, confidence and ability of school nurses in managing SCD in the school-setting and identified continuing educational needs and preferences. This study used a qualitative, descriptive approach. A survey was previously administered to over 400 school nurses who worked in K-12 schools in Ohio. Those participants who reported experience with managing SCD were invited to participate in a focus group or semi-structured interview. Data were interpreted using thematic analysis strategy. Four overarching themes emerged from the data: (1) perceived lack of support and resources, (2) self-reported lack of knowledge about SCD, (3) importance of partnerships with parents, and (4) need for continuing education and networking with other school nurses. Easily accessible, educational interventions, along with peer networking, can be designed to improve school nurse knowledge and confidence levels in managing SCD. These types of on-demand interventions are important as many school nurses reported infrequent exposure to students with SCD.
镰状细胞病（SCD）是一种罕见的血液疾病，可能会导致危及生命的并发症。这对学校护士来说是一个挑战，因为他们可能在学校环境中处理并发症的经验有限。本研究评估了学校护士在学校环境中管理 SCD 的经验、自我报告的知识、信心和能力，并确定了继续教育的需求和偏好。本研究采用定性、描述性方法。之前对俄亥俄州 K-12 学校的 400 多名学校护士进行了调查。那些报告有管理 SCD 经验的参与者被邀请参加焦点小组或半结构化访谈。使用主题分析策略对数据进行解释。数据中出现了四个总体主题：（1）缺乏支持和资源的感觉，（2）自我报告的 SCD 知识不足，（3）与家长建立伙伴关系的重要性，（4）需要继续教育和与其他学校护士建立联系。可以设计易于获取的教育干预措施以及同行网络，以提高学校护士管理 SCD 的知识和信心水平。这些按需干预措施很重要，因为许多学校护士报告说很少接触到患有 SCD 的学生。
