McCormack Ciara, Cullivan Sarah, Kehoe Brona, McCaffrey Noel, Gaine Sean, McCullagh Brian, Moyna Niall M, Hardcastle Sarah J
School of Health & Human Performance, Dublin City University, Dublin, Ireland.
National Pulmonary Hypertension Unit, Mater Misericordiae University Hospital, Dublin, Ireland.
Pulm Circ. 2021 Nov 5;11(4):20458940211056509. doi: 10.1177/20458940211056509. eCollection 2021 Oct-Dec.
Pulmonary hypertension is a progressive cardiorespiratory disease that is characterized by considerable morbidity and mortality. While physical activity can improve symptoms and quality of life, engagement in this population is suboptimal. The aim of this study was to explore attitudes towards exercise and the dimensions that influence physical activity participation in individuals with pulmonary hypertension. Virtual, semi-structured interviews were conducted with individuals, with a formal diagnosis of pulmonary hypertension. Participants were recruited through the Pulmonary Hypertension Association of Ireland. Interviews were transcribed and analysed using thematic analysis. Nineteen patients were interviewed (n = 19). There was a female preponderance (n = 13) and the mean age was 50 ± 12 years. Three themes were identified and included fear, perceived value of exercise and environmental factors. Fear was the primary theme and included three sub-themes of fear of (i) over-exertion, (ii) physical damage and (iii) breathlessness. The perceived value of exercise encompassed two distinct sub-themes of perceived (i) exercise importance and (ii) benefits of exercise. Environmental factors included the terrain, weather conditions and location. Fear of overexertion, harm and dyspnoea strongly influenced attitudes to and engagement in physical activity. This study revealed heterogenous patient perspectives regarding the importance of physical activity and exercise. Future interventions that mitigate fear and promote the value of physical activity for individuals with pulmonary hypertension may have considerable benefits in promoting physical activity engagement. Such interventions require multidisciplinary involvement, including specialised pulmonary hypertension clinicians and exercise and behaviour change specialists.
肺动脉高压是一种进行性心肺疾病，具有较高的发病率和死亡率。虽然体育活动可以改善症状和生活质量，但该人群的参与度并不理想。本研究的目的是探讨肺动脉高压患者对运动的态度以及影响其参与体育活动的因素。对确诊为肺动脉高压的患者进行了虚拟半结构化访谈。通过爱尔兰肺动脉高压协会招募参与者。访谈内容经转录后采用主题分析法进行分析。共访谈了19名患者（n = 19）。女性占多数（n = 13），平均年龄为50±12岁。确定了三个主题，包括恐惧、运动的感知价值和环境因素。恐惧是主要主题，包括对（i）过度劳累、（ii）身体损伤和（iii）呼吸困难的恐惧这三个子主题。运动的感知价值包括感知到的（i）运动重要性和（ii）运动益处这两个不同的子主题。环境因素包括地形、天气条件和地点。对过度劳累、伤害和呼吸困难的恐惧强烈影响了对体育活动的态度和参与度。本研究揭示了患者对体育活动和运动重要性的不同观点。未来针对减轻肺动脉高压患者恐惧并促进体育活动价值的干预措施，可能会在促进体育活动参与方面带来显著益处。此类干预措施需要多学科参与，包括专业的肺动脉高压临床医生以及运动和行为改变专家。
