Jotterand Fabrice, Spellecy Ryan, Shaker Reza
Center for Bioethics and Medical Humanities, Medical College of Wisconsin, 8701 Watertown Plank Road, WI, 53226, Milwaukee, USA.
Institute for Biomedical Ethics, University of Basel, Bernoullistrasse 28, 4056, Basel, Switzerland.
Arch Public Health. 2021 Nov 16;79(1):198. doi: 10.1186/s13690-021-00726-w.
In this commentary we assert that the rights and responsibilities of the community at large as an important key stakeholder in the effort of advancing health through research and discovery have not been carefully examined and delineated. The time has come to investigate the nature of the rights and responsibilities of the public in advancing health through research and discovery. We argue that the public has the right not merely to participate in research and have their rights protected, but that they have a right to engage in and take ownership in research.