School of Nursing, 12610Tianjin Medical University, China.
Nursing Department, 74671The Second Hospital of Tianjin Medical University, China.
Clin Rehabil. 2022 Mar;36(3):407-414. doi: 10.1177/02692155211050558. Epub 2021 Nov 17.
To explore the effect of stigma on social participation in community-dwelling Chinese patients with stroke sequelae.
A cross-sectional survey study.
The study was conducted in two community centres in Tianjin, China.
Community-dwelling Chinese patients with stroke sequelae.
Chinese version of Stigma Scale for Chronic Illness, Chinese version of Impact on Participation and Autonomy, Modified Barthel index, Self-Rating Depression Scale, Social Support Rating Scale, Medical Coping Modes Questionnaire, background and disease-related questions. Pearson's correlation coefficients were computed between stigma and social participation. The impact of stigma on social participation was estimated by hierarchical multiple regression analysis after controlling for demographic, physical and psychosocial characteristics.
In total, 136 patients with stroke sequelae were included in this study, with a mean age of 67.8 years. The Chinese version of the Stigma Scale for Chronic Illness had a mean score of 48.4 (SD 16.9), and the Chinese version of the Impact on Participation and Autonomy was 67.1 (SD 21.1). Significant correlations were found between stigma and social participation. Pearson's correlation coefficient ranged from 0.354 to 0.605 ( < 0.01). Enacted stigma provided a significant explanation for the variance of social participation by 1.1% ( < 0.05). Felt stigma provided a significant explanation for the variance of social participation by 2.9% ( < 0.001).
Felt stigma and enacted stigma have independent associations with social participation. Patients with stroke sequelae who reported higher stigma experienced a lower level of social participation.
探索 stigma（污名）对社区居住的中国脑卒中后遗症患者社会参与的影响。
横断面调查研究。
在中国天津的两个社区中心进行。
社区居住的中国脑卒中后遗症患者。
慢性病 stigma 量表中文版、参与和自主影响量表中文版、改良 Barthel 指数、抑郁自评量表、社会支持评定量表、医学应对方式问卷、背景和疾病相关问题。采用 Pearson 相关系数分析 stigma 与社会参与之间的关系。在控制人口统计学、身体和心理社会特征后，采用分层多元回归分析估计 stigma 对社会参与的影响。
本研究共纳入 136 例脑卒中后遗症患者，平均年龄为 67.8 岁。慢性病 stigma 量表中文版平均得分为 48.4（SD 16.9），参与和自主影响量表中文版平均得分为 67.1（SD 21.1）。Stigma 与社会参与之间存在显著相关性。Pearson 相关系数范围为 0.354 至 0.605（<0.01）。实施 stigma 可解释社会参与方差的 1.1%（<0.05），感受 stigma 可解释社会参与方差的 2.9%（<0.001）。
感受 stigma 和实施 stigma 与社会参与独立相关。报告 stigma 较高的脑卒中后遗症患者社会参与水平较低。
