Division of Pediatric Rheumatology, Department of Pediatrics, Children's Hospital at Montefiore/Albert Einstein College of Medicine, 3415 Bainbridge Avenue, Bronx, NY 10467, USA. Electronic address: https://twitter.com/@akinsetemd.
Epidemiology Branch, National Institute of Environmental Health Sciences, National Institutes of Health, 111 TW Alexander Drive, Research Triangle Park, NC 27709, USA. Electronic address: https://twitter.com/@jmpwoo.
Rheum Dis Clin North Am. 2022 Feb;48(1):183-198. doi: 10.1016/j.rdc.2021.09.014.
Health and health care disparities in pediatric rheumatology are prevalent among socially disadvantaged and marginalized populations based on race/ethnicity, socioeconomic position, and geographic region. These groups are more likely to experience greater disease severity, morbidity, mortality, decreased quality of life, and poor mental health outcomes, which are in part due to persistent structural and institutional barriers, including decreased access to quality health care. Most of the research on health and health care disparities in pediatric rheumatology focuses on juvenile idiopathic arthritis and childhood-onset systemic lupus erythematosus; there are significant gaps in the literature assessing disparities associated with other pediatric rheumatic diseases. Understanding the underlying causes of health care disparities will ultimately inform the development and implementation of innovative policies and interventions on a federal, local, and individual level.
儿科风湿病中的健康和医疗保健差距在社会劣势和边缘化人群中很普遍,这些人群基于种族/民族、社会经济地位和地理位置。这些群体更有可能经历更严重的疾病、更高的发病率和死亡率、生活质量下降以及心理健康状况不佳的情况,这在一定程度上是由于持续存在的结构性和制度性障碍,包括获得高质量医疗保健的机会减少。儿科风湿病中健康和医疗保健差距的大多数研究都集中在青少年特发性关节炎和儿童发病的系统性红斑狼疮上;在评估与其他儿科风湿性疾病相关的差异方面,文献存在很大差距。了解医疗保健差距的根本原因最终将为联邦、地方和个人层面制定和实施创新政策和干预措施提供信息。