Cancer Health Literacy Research Centre, Princess Margaret Cancer Centre, Toronto, Canada; Patient Education, Ontario Health (Cancer Care Ontario), Toronto, Canada; Institute of Health Policy, Management and Evaluation, University of Toronto, Toronto, Canada; The Institute for Education Research (TIER), University Health Network, Toronto, Canada; Radiation Medicine Program, Princess Margaret Cancer Centre, Toronto, Canada.
Cancer Health Literacy Research Centre, Princess Margaret Cancer Centre, Toronto, Canada; Radiation Medicine Program, Princess Margaret Cancer Centre, Toronto, Canada.
Patient Educ Couns. 2022 Jul;105(7):1722-1730. doi: 10.1016/j.pec.2021.10.012. Epub 2021 Oct 23.
The cancer system is experiencing a rise in cancer prevalence, a workforce shortage, and is resource-stretched. In this environment, informal caregivers (unpaid family caregivers of cancer patients) are required to take on expanded care roles and experience the debilitating effects of caregiver burden. Education programs are increasingly being developed to support caregivers. The aim of this review is to summarize what is known about these programs.
A scoping review was conducted from May 2019 to January 2020. The literature search yielded 34,906 articles.
119 articles were included, and ninety-two (77%) were focused on in-person psychoeducational programs.
Most caregiver programs have a unidimensional focus on psychoeducational training, demonstrating a need for more comprehensive programming to address the full spectrum of caregiver needs.
Clinicians and educators must collaborate to create accessible, equitable education programs that comprehensibly address the needs of unpaid family caregivers beyond addressing psychological aspects of cancer care. This will ensure that a broader range of patients and caregivers are equipped with the knowledge and skills needed to cope with a cancer diagnosis, navigate the health system and to maintain their quality of life.
癌症系统正面临癌症发病率上升、劳动力短缺和资源紧张的局面。在这种情况下，非正式照顾者（癌症患者的无薪家庭照顾者）需要承担更多的照顾角色，并体验到照顾者负担带来的衰弱影响。越来越多的教育项目正在为照顾者提供支持。本综述旨在总结这些项目的情况。
2019 年 5 月至 2020 年 1 月进行了范围综述。文献检索产生了 34906 篇文章。
共纳入 119 篇文章，其中 92 篇（77%）重点关注面对面的心理教育项目。
大多数照顾者项目都将重点放在单一的心理教育培训上，这表明需要更全面的项目来满足照顾者的全部需求，而不仅仅是解决癌症护理的心理方面。
临床医生和教育工作者必须合作，创建易于获取、公平的教育项目，全面满足无薪家庭照顾者的需求，而不仅仅是解决癌症护理的心理方面。这将确保更广泛的患者和照顾者具备应对癌症诊断、应对医疗体系和维持生活质量所需的知识和技能。
