照顾患有左心发育不全综合征的儿童：家长与医学视角
Caring for a Child with Hypoplastic Left Heart Syndrome: Parent and Medical Perspective.
作者信息
Nicholas Benjamin, Nicholas Christina, Allen Robin L, Cua Clifford L
机构信息
Patient Author, Columbus, OH, USA.
Heart Center, Nationwide Children's Hospital, Columbus, OH, USA.
出版信息
Cardiol Ther. 2022 Mar;11(1):9-12. doi: 10.1007/s40119-021-00246-2. Epub 2021 Nov 26.
Abstract
This article, co-authored by parents of a child with hypoplastic left heart syndrome (HLHS) and his pediatric cardiology care team, discusses the parents' experience of having a child with HLHS from diagnosis through living day-to-day with the heart condition as well as future directions.
摘要
这篇文章由一名患有左心发育不全综合征（HLHS）儿童的父母及其儿科心脏病护理团队共同撰写，讨论了父母从孩子被诊断出患有HLHS到与这种心脏疾病一起生活的日常经历以及未来的方向。
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