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患者对初级保健中纤维肌痛综合征多组分干预的评价:一项焦点小组研究。

Patients' appraisals about a multicomponent intervention for fibromyalgia syndrome in primary care: a focus group study.

机构信息

Unitat de Suport a La Recerca Terres de l'Ebre, Institut Universitari d'Investigació En Atenció Primària Jordi Gol (Idiap Jordi Gol), Tortosa, Spain.

Department of Pediatrics, Obstetrics and Gynecology, and Preventive Medicine, Universitat Autònoma de Barcelona, Spain.

出版信息

Int J Qual Stud Health Well-being. 2021 Dec;16(1):2005760. doi: 10.1080/17482631.2021.2005760.

Abstract

PURPOSE

To assess fibromyalgia patients' experiences and appraisals about a multidisciplinary intervention programme, in Catalonia's primary care, regarding its format and contents, benefits, and health impact in the short and long term.

METHOD

Qualitative interpretative research design through hermeneutic phenomenology perspective. Two focus groups discussions were conducted in February and July 2020. The purposive heterogeneous sample included 19 fibromyalgia patients who attended a multicomponent programme. In addition, thematic analysis on the verbatims was performed.

RESULTS

Findings were organized into five main domains with an explanatory theme each. Overall, the informants valued the programme as a positive experience due to its holistic approach, health benefits, suffering relief, group effect, and fibromyalgia legitimacy promotion. Detected improvable aspects focused on extending the timeframe, including family members as beneficiaries, deepening the thematic contents, and getting regular access to this healthcare service. Furthermore, the intervention was considered feasible to be incorporated into usual clinical care.

CONCLUSION

the programme fulfilled users' expectations about results and procedure and showed promise as a treatment strategy to reinforce the usual practice. Our findings suggest a broad perspective on fibromyalgia patients' suffering, which urges us to adjust the intervention programme to their real health needs.

摘要

目的

评估纤维肌痛患者在加泰罗尼亚初级保健中对多学科干预方案的体验和评价,包括其格式和内容、短期和长期的益处以及对健康的影响。

方法

通过解释现象学的角度进行定性解释性研究设计。在 2020 年 2 月和 7 月进行了两次焦点小组讨论。目的是选择具有异质性的样本,包括 19 名参加多组分方案的纤维肌痛患者。此外,对逐字记录进行了主题分析。

结果

研究结果组织成五个主要领域,每个领域都有一个解释性主题。总体而言,由于该方案的整体方法、健康益处、缓解痛苦、群体效应和纤维肌痛合法化促进,患者认为该方案是一种积极的体验。发现可改进的方面集中在延长时间框架、包括家庭成员作为受益人、深化主题内容以及定期获得这种医疗保健服务。此外,该干预措施被认为是可行的,可以纳入常规临床护理。

结论

该方案满足了使用者对结果和程序的期望,并显示出作为强化常规实践的治疗策略的潜力。我们的研究结果表明,对纤维肌痛患者的痛苦需要有更广泛的认识,这促使我们根据他们的实际健康需求调整干预方案。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/319f/8843386/1a984d9d2a10/ZQHW_A_2005760_F0001_B.jpg

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