Helou Amyna, Stewart Kay, Ryan Kath, George Johnson
Centre for Medicine Use and Safety, Faculty of Pharmacy and Pharmaceutical Sciences, Monash University, 381 Royal Parade, Parkville, Melbourne, Victoria, Australia.
Reading School of Pharmacy, University of Reading, Whiteknights, Reading, RG6 6AP, UK.
BMC Health Serv Res. 2021 Dec 2;21(1):1292. doi: 10.1186/s12913-021-07320-4.
Hypertensive disorders are a leading cause of mortality and morbidity during pregnancy. Despite multiple national and international clinical guidelines and a plethora of research in the field of optimising management, there has been limited research describing the perspectives and experiences of pregnant women with the management of hypertensive disorders of pregnancy (HDP). Understanding these perceptions and experiences is imperative to the optimisation of HDP management.
A qualitative study involving face-to-face, in-depth interviews were undertaken with 27 pregnant women diagnosed with and being treated for HDP to explore their perspectives of and experiences with clinical management. Written consent was obtained individually from each participant, and the interviews ranged from 16 to 54 min. Inductive codes were generated systematically for the entire data set. Line-by-line analysis was then performed and nodes were created within NVivo, a qualitative data management software. Data collection was continued until thematic saturation was reached. Thematic analysis was employed to interpret the data.
Three major descriptive themes were discerned regarding the women's perspectives on and experiences with the management of HDP: attitudes towards monitoring of HDP, attitudes and perceptions towards development and management of complications, and perceptions of pregnant women with chronic hypertension. Trust in the hospital system, positive attitudes towards close blood pressure monitoring as well as self-monitoring of blood pressure, and a realistic approach to emergency antenatal hospital admissions contributed to a positive attitude towards monitoring of HDP. Women with prior experiences of HDP complications, including pre-eclampsia, were more confident in their clinical management and knew what to expect. Those without prior experience were often in shock when they developed pre-eclampsia. Some women with chronic hypertension displayed limited understanding of the potential risks that they may experience during pregnancy and thus lacked comprehension of the seriousness of the condition.
The clinical management experiences of pregnant women with HDP were varied. Many women did not feel that they were well informed of management decisions and had a desire to be more informed and involved in decision-making. Clear, concise information about various facets of HDP management including blood pressure monitoring, prescription of the appropriate antihypertensive agent, and planning for potential early delivery are required.
高血压疾病是孕期死亡和发病的主要原因。尽管有多项国家和国际临床指南,以及该领域大量关于优化管理的研究,但描述孕妇对妊娠高血压疾病(HDP)管理的观点和经历的研究却很有限。了解这些认知和经历对于优化HDP管理至关重要。
对27名被诊断患有HDP并正在接受治疗的孕妇进行了一项定性研究,采用面对面深入访谈的方式,以探讨她们对临床管理的观点和经历。从每位参与者处单独获得书面同意,访谈时长从16分钟到54分钟不等。对整个数据集系统地生成归纳编码。然后逐行分析,并在定性数据管理软件NVivo中创建节点。持续收集数据直至达到主题饱和。采用主题分析来解释数据。
在孕妇对HDP管理的观点和经历方面识别出三个主要描述性主题:对HDP监测的态度、对并发症发生和管理的态度及认知,以及对慢性高血压孕妇的认知。对医院系统的信任、对密切血压监测以及自我血压监测的积极态度,以及对紧急产前入院的现实态度,促成了对HDP监测的积极态度。有HDP并发症(包括子痫前期)既往经历的女性对其临床管理更有信心,并且知道会发生什么。那些没有既往经历的女性在发生子痫前期时往往会感到震惊。一些患有慢性高血压的女性对她们在孕期可能面临的潜在风险了解有限,因此对病情的严重性缺乏认识。
患有HDP的孕妇的临床管理经历各不相同。许多女性觉得她们没有充分了解管理决策,并且希望获得更多信息并参与决策。需要提供关于HDP管理各个方面的清晰、简洁信息,包括血压监测、合适降压药物的处方以及潜在的提前分娩计划。