Meyer Center for Developmental Pediatrics, Department of Pediatrics, Baylor College of Medicine, Houston, TX, USA.
Spina Bifida Transition Clinic, Texas Children's Hospital, Houston, TX, USA.
J Pediatr Rehabil Med. 2021;14(4):691-697. doi: 10.3233/PRM-210119.
The COVID-19 pandemic has posed distinctive challenges to adolescents and young adults living with spina bifida, especially those from ethic minority populations. With this public health challenge in mind, developing a customized electronic health record to leverage registry data to promote and quantify COVID-19 vaccination uptake among this population is feasible. We provide a brief description of our activities in customizing an electronic health record to track vaccination uptake among adolescents and young adults with spina bifida (AYASB); and the lessons learned, in hopeful support of those scaling-up vaccination delivery across the globe for AYASB as they transition to adult-centered care. Thus, as providers think globally and act locally, COVID-19 immunization efforts can be implemented while providing culturally appropriate transition policies and services for individuals with neurodevelopmental disabilities.
COVID-19 大流行给患有脊柱裂的青少年和年轻人带来了独特的挑战，尤其是那些少数族裔人群。考虑到这一公共卫生挑战，开发一个定制的电子健康记录，利用登记数据来促进和量化这一人群的 COVID-19 疫苗接种率是可行的。我们简要描述了我们在定制电子健康记录以跟踪患有脊柱裂的青少年和年轻人（AYASB）的疫苗接种情况方面所做的工作；并总结了经验教训，希望为全球范围内为 AYASB 提供疫苗接种服务提供支持，因为他们正在向以成人为中心的护理模式过渡。因此，当提供者从全球角度思考并采取本地行动时，可以在为有神经发育障碍的个人提供文化上适当的过渡政策和服务的同时，实施 COVID-19 免疫计划。
