J Hosp Palliat Nurs. 2022 Feb 1;24(1):64-69. doi: 10.1097/NJH.0000000000000818.
Hospice and palliative care research aim to build a knowledge base to guide high-quality care for people with serious illness and improve their quality of life. Considering its focus on patient and family caregiver's experiences, hospice and palliative care research activities primarily take place in real-world clinical settings where seriously ill patients and their family caregivers receive care (eg, nursing homes, clinics, inpatient units). Conducting research in these settings poses many challenges because researchers, clinicians, and administrators may have different priorities-and scientific control is difficult. Therefore, clinician-researcher-administrator collaboration in planning and conducting studies is critical for successful hospice and palliative care research. For an effective collaboration, clinicians, researchers, and site administrators must be considered equal partners. Each collaborator brings their unique expertise, knowledge, and skills that when combined can strengthen scientific rigor, feasibility, and success of the project, as well as have study outcomes that are more translatable to real-world practice. However, little guidance exists to give actionable steps to build collaborative partnerships for hospice and palliative care researchers. The purpose of this article is to describe the process of forming successful clinician-researcher-administrator collaborations through five phases of the research life cycle: idea generation, partnership, proposal writing, research process, and dissemination. Exemplars are drawn from the authors' experiences conducting collaborative research and highlight strategies and resources for successful hospice and palliative care collaborations.
缓和医疗与姑息治疗研究旨在构建知识库，以指导为重病患者提供高质量的护理，并提高他们的生活质量。考虑到其对患者和家庭照护者体验的关注，缓和医疗与姑息治疗研究活动主要在真实临床环境中进行，重病患者及其家庭照护者在这些环境中接受护理（例如，疗养院、诊所、住院病房）。在这些环境中开展研究存在诸多挑战，因为研究人员、临床医生和管理人员的优先事项可能不同，而且科学控制也较为困难。因此，临床医生-研究人员-管理人员在规划和开展研究方面的合作对于成功的缓和医疗与姑息治疗研究至关重要。为了实现有效的合作，临床医生、研究人员和现场管理人员必须被视为平等的合作伙伴。每个合作者都带来了他们独特的专业知识、知识和技能，这些知识和技能结合起来可以增强项目的科学性、可行性和成功性，并使研究结果更能转化为实际实践。然而，对于缓和医疗与姑息治疗研究人员来说，几乎没有指导如何建立合作关系的具体步骤。本文的目的是通过研究生命周期的五个阶段来描述形成成功的临床医生-研究人员-管理人员合作的过程：想法产生、伙伴关系、提案撰写、研究过程和传播。实例取自作者进行合作研究的经验，并强调了成功的缓和医疗与姑息治疗合作的策略和资源。
