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对痴呆症辅助死亡的态度:一项针对年轻和年长成年人的焦点小组研究。

Attitudes Towards Assisted Dying in Dementia: A Focus Group Study with Younger and Older Adults.

机构信息

School of Psychology, University of Leeds, Leeds, UK.

Department of Psychology, University of Alberta, Edmonton, AB, Canada.

出版信息

Omega (Westport). 2024 Feb;88(3):1051-1067. doi: 10.1177/00302228211063297. Epub 2021 Dec 7.

DOI:10.1177/00302228211063297
PMID:34875922
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10768330/
Abstract

: To explore attitudes towards assisted dying in dementia (ADID) and the rationales underlying these attitudes, among younger and older adults.: We conducted separate focus groups with younger ( = 11) and older adults ( = 14) in the United Kingdom with personal or professional experience of dementia. Discussions were prompted by two vignettes depicting scenarios of ADID. The data were transcribed and analysed using thematic analysis.: Though sometimes stronger in the older adults, many of the attitudes and underlying rationales were common across the age groups. Analysis generated four themes: 'Perceptions of the disease', 'A case for empowerment', 'The morality of killing' and 'Logistical complexities'.: For some, ADID was a hopeful alternative to the challenges they had witnessed in dementia. For others, the logistical problems surrounding ADID were insurmountable. Discussions were informed and insightful, highlighting the importance of including the general public in this ongoing debate.

摘要

: 探讨年轻和老年成年人对痴呆症辅助死亡(ADID)的态度及其背后的理由:我们在英国分别与有个人或专业痴呆症经验的年轻组(= 11)和老年组(= 14)进行了焦点小组讨论。讨论由两个描述 ADID 情景的小插曲引发。使用主题分析对数据进行了转录和分析。:尽管在老年人中有时更强,但许多态度和背后的理由在年龄组之间是共同的。分析产生了四个主题:“对疾病的看法”、“赋予权力的理由”、“杀人的道德”和“后勤复杂性”。:对于一些人来说,ADID 是他们在痴呆症中所目睹的挑战的一个有希望的选择。对于其他人来说,ADID 周围的后勤问题是无法克服的。讨论是知情和有见地的,强调了在这场持续的辩论中让公众参与的重要性。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/2212/10768330/1aff34860670/10.1177_00302228211063297-fig2.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/2212/10768330/e6c33c8fe9d7/10.1177_00302228211063297-fig1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/2212/10768330/1aff34860670/10.1177_00302228211063297-fig2.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/2212/10768330/e6c33c8fe9d7/10.1177_00302228211063297-fig1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/2212/10768330/1aff34860670/10.1177_00302228211063297-fig2.jpg

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本文引用的文献

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Assisted dying around the world: a status quaestionis.全球辅助死亡状况:一个悬而未决的问题。
Ann Palliat Med. 2021 Mar;10(3):3540-3553. doi: 10.21037/apm-20-637. Epub 2020 Sep 4.
2
Is this person with dementia (currently) competent to request euthanasia? A complicated and underexplored question.这个患有痴呆症的人目前有能力请求安乐死吗?这是一个复杂且未得到充分探讨的问题。
J Med Ethics. 2020 Aug 13. doi: 10.1136/medethics-2020-106091.
3
The Campbell Paradigm as a Behavior-Predictive Reinterpretation of the Classical Tripartite Model of Attitudes.
坎贝尔范式作为对经典态度三方模型的行为预测性重新诠释。
Eur Psychol. 2019;24(4):359-374. doi: 10.1027/1016-9040/a000364. Epub 2019 Jul 10.
4
Relational autonomy: what does it mean and how is it used in end-of-life care? A systematic review of argument-based ethics literature.关系自主性:它是什么意思,以及它如何在临终关怀中使用?基于论点的伦理学文献的系统综述。
BMC Med Ethics. 2019 Oct 26;20(1):76. doi: 10.1186/s12910-019-0417-3.
5
Euthanasia requests in dementia cases; what are experiences and needs of Dutch physicians? A qualitative interview study.痴呆症病例中的安乐死请求;荷兰医生的经历和需求是什么?一项定性访谈研究。
BMC Med Ethics. 2019 Oct 4;20(1):66. doi: 10.1186/s12910-019-0401-y.
6
Quality of end-of-life care in patients with dementia compared to patients with cancer: A population-based register study.痴呆症患者与癌症患者临终关怀质量的比较:一项基于人群的登记研究。
PLoS One. 2018 Jul 30;13(7):e0201051. doi: 10.1371/journal.pone.0201051. eCollection 2018.
7
End-of-life care: A qualitative study comparing the views of people with dementia and family carers.终末期照护:一项比较痴呆症患者和家庭照顾者观点的定性研究。
Palliat Med. 2018 Mar;32(3):631-642. doi: 10.1177/0269216317736033. Epub 2017 Oct 12.
8
Attitudes of Nurses and the General Public Towards Euthanasia on Individuals with Dementia and Cognitive Impairment.护士和公众对痴呆和认知障碍个体安乐死的态度。
Dementia (London). 2019 May;18(4):1466-1478. doi: 10.1177/1471301217717063. Epub 2017 Jul 12.
9
End of Life Care: A Scoping Review of Experiences of Advance Care Planning for People with Dementia.临终关怀:对痴呆症患者预先护理计划经验的范围审查。
Dementia (London). 2019 Apr;18(3):825-845. doi: 10.1177/1471301216676121. Epub 2016 Nov 7.
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