Department of Neuropediatrics, SPZ for Chronically Sick Children, Charité - Berlin University of Medicine, Berlin, Germany.
Kinderarztpraxis, Berlin, Germany.
Neuropediatrics. 2022 Apr;53(2):102-108. doi: 10.1055/s-0041-1740377. Epub 2021 Dec 8.
The aim of the study was to determine the psychometric properties of the German version of the Cerebral Palsy Quality of Life Questionnaire for Children and Adolescents (CP QOL-Child and -Teen). It is a condition-specific questionnaire with a self-report version, measuring well-being rather than ill-being, which differs from existing measurement methods. Fourteen children (9-12 years) and 64 caregivers (4-12 years) answered the child questionnaire. Twenty-one adolescents and 26 caregivers (all adolescents 13-18 years) replied to the teen version. Functioning was categorized by the Gross Motor Function Classification System. For CP QOL-child internal consistency (Cronbach's α) ranged from 0.58 to 0.88 and for CP QOL-Teen from 0.68 to 0.95. Test-retest reliability after 2 to 4 weeks ranged between 0.75 and 0.94 in children's version and 0.89 and 0.96 in teen's version. Correlation with well-established generic KIDSCREEN-10 questionnaire was moderate to strong. The German versions of CP QOL-Child and -Teen are appropriate tools for assessing the quality of life of children and adolescents with cerebral palsy in the German-speaking population.
本研究旨在确定儿童青少年脑性瘫痪生活质量问卷（CP QOL-Child 和 Teen）德语文本的心理测量特性。它是一种特定于疾病的问卷，采用自我报告的形式，测量的是幸福感而非疾病痛苦，这与现有的测量方法不同。14 名儿童（9-12 岁）和 64 名照顾者（4-12 岁）回答了儿童问卷。21 名青少年和 26 名照顾者（所有青少年 13-18 岁）则回答了青少年版本。功能由粗大运动功能分类系统进行分类。CP QOL-Child 的内部一致性（Cronbach's α）为 0.58 至 0.88，CP QOL-Teen 的内部一致性为 0.68 至 0.95。在儿童版本中，2 至 4 周后的重测信度在 0.75 至 0.94 之间，在青少年版本中为 0.89 至 0.96。与经过充分验证的通用 KIDSCREEN-10 问卷的相关性为中度至高度。CP QOL-Child 和 Teen 的德语版本是评估德语人群中脑瘫儿童和青少年生活质量的合适工具。
