Jack Brockhoff Child Health and Wellbeing Program, McCaughey Centre, University of Melbourne, Melbourne, Victoria, Australia.
Res Dev Disabil. 2013 Jan;34(1):344-52. doi: 10.1016/j.ridd.2012.08.018. Epub 2012 Sep 16.
To assess the measurement properties of a new QOL instrument, the Cerebral Palsy Quality of Life Questionnaire-Teen (CP QOL-Teen), in adolescents with cerebral palsy (CP) aged 13-18 years, examining domain structure, reliability, validity and adolescent-caregiver concordance. Based on age, 695 eligible families were invited to participate by mail. Questionnaires were returned by 112 primary caregivers (71.8% of questionnaires sent). 87 adolescents aged 12-18 years also completed the questionnaires. CP QOL-Teen, generic QOL instruments (KIDSCREEN, Pediatric Quality of Life Inventory), functioning (Gross Motor Function Classification System) and a condition-specific instrument (PedsQL-CP) were used. Principal components analysis produced seven scales: wellbeing and participation; communication and physical health; school wellbeing; social wellbeing; access to services; family health; feelings about functioning. Cronbach's alphas for the derived scales ranged from 0.81 to 0.96 (primary caregiver report) and 0.78 to 0.95 (adolescent report). Test-retest reliability (4 weeks) ranged from 0.57 to 0.88 for adolescent self-report and 0.29 to 0.83 for primary caregiver report. Moderate correlations were observed with other generic and condition specific measures of QOL, indicating adequate construct validity. Moderate correlations were observed between adolescent self-report and primary caregiver proxy report. This study demonstrates acceptable psychometric properties of both the adolescent self-report and the primary caregiver proxy report versions of the CP QOL-Teen.
为了评估一种新的生活质量量表——脑瘫青少年生活质量问卷（CP QOL-Teen）在 13-18 岁脑瘫青少年中的测量性能，我们对该量表的领域结构、信度、效度和青少年与照料者的一致性进行了研究。根据年龄，通过邮件邀请了 695 名符合条件的家庭参与。共收到 112 名主要照顾者（发送问卷的 71.8%）的回复。87 名 12-18 岁的青少年也完成了问卷。使用了 CP QOL-Teen、通用生活质量量表（KIDSCREEN、儿科生活质量量表）、功能（粗大运动功能分类系统）和特定疾病量表（PedsQL-CP）。主成分分析产生了七个量表：幸福感和参与度；沟通和身体健康；学校幸福感；社会幸福感；服务获取；家庭健康；对功能的感受。得出的量表的克朗巴赫 α系数在照顾者报告中为 0.81-0.96，在青少年报告中为 0.78-0.95。青少年自我报告的重测信度（4 周）为 0.57-0.88，照顾者报告的重测信度为 0.29-0.83。与其他通用和特定疾病的生活质量测量指标有中等程度的相关性，表明具有足够的结构效度。在青少年自我报告和主要照顾者代理报告之间观察到了中等程度的相关性。本研究表明 CP QOL-Teen 的青少年自我报告和主要照顾者代理报告版本均具有可接受的心理测量学特性。
