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[根据居住地点划分的口咽吞咽困难患者的生活质量差异:对食物选择和饮食类型的影响]

[Differences in the quality of life of patients with oropharyngeal dysphagia according to the place of residence: impact on food selection and type of diet].

作者信息

Peñalva Arigita Amaya, Lecha Benet Maria, Sansano Alguero Anna, Prats Farreras Rosa, Gomes Vasquez Aida, Bascuñana Ambrós Helena, Vila Ballester Lluis

机构信息

Unitat de Nutrició i Dietètica. Hospital Moisès Broggi.

Unitat de Rehabilitació. Hospital de la Santa Creu i Sant Pau.

出版信息

Nutr Hosp. 2022 Feb 9;39(1):46-52. doi: 10.20960/nh.03824.

Abstract

Background: dysphagia is a disabling, uncomfortable symptom with repercussions on daily basic aspects of well-being. The SWAL-QoL test is validated for checking dysphagia's impact on quality of life (QoL). Methods: a descriptive cross-sectional study. Randomized patients from our in-house Nutrition & Dietetics database. Telephone interviews directly with patients or caregivers. SWAL-QoL test, 11 sections: swallowing, eating, symptoms, food selection, communication, fears, mental health, fatigue, and social function. A 1-5 Likert scale was adjusted and final results were linearly transferred to 0-100 (100 being best positive score). Results as follows: 0-49 severe impact (SI), 50-70 moderate impact (MI), and 71-100 mild impact or no impact (DI/NI). Variables: gender, age, days with treatment, residence: Home (H)/nursing home (NH), indication of commercial thickener (CT) by V/V test: nectar (N), honey (H), pudding (P), days with CT, type of diets; pureed (PD), soft diet (SD), mixed(P&S/D), regular (RD), SWAL-QoL sections. Results: a total of 202 patients with a mean age of 85 years (23-103); IQR: 12. Mostly women, 57.9 %. Dwelling: 43.1 % H/56.9 % NH. SWAL-QoL: SI affects 19.3 %, 59.9 % MI and 20.8 % DI/NI. Using less thickener proved a better QoL; SI in pudding 21.1 % vs nectar 15.3 %, p = 0.04. Diets included 66.3 % PD; 3 % SD; MD, 21.3 %, and RD, 9.4 %. At NH 86.1 % of PD vs 40.2 % at H, p < 0.001. Direct impact of diet on QoL: 30.8 % on DI or no impact of grouped diets vs 15.7 % with PD, p = 0.016. Analysing each section by H/NH, significant difference between fears, higher at H, 57.01 ± 36.41 vs NH, 48.70 ± 27.03, p < 0.001; worse mental health for NH, 66.44 ± 34.30 vs H, 47.48 ± 24.06, p < 0.001; better food selection for H, 75.86 ± 34.12 vs NH, 68.17 ± 33.60, p < 0.01. Conclusions: defining QoL contributes to a better understanding of patient needs. More information to confront their fears is helpful to adjust the texture of liquids properly. Increasing adaptations of diets and diversity in food selection are needed especially in those living in NH.

摘要

背景

吞咽困难是一种致残性的、令人不适的症状,会对日常生活的基本健康状况产生影响。吞咽困难生活质量(SWAL-QoL)测试已被验证可用于检查吞咽困难对生活质量(QoL)的影响。方法:一项描述性横断面研究。从我们内部的营养与饮食数据库中随机选取患者。直接通过电话对患者或护理人员进行访谈。采用SWAL-QoL测试,该测试有11个部分:吞咽、进食、症状、食物选择、沟通、恐惧、心理健康、疲劳和社会功能。采用1 - 5李克特量表进行调整,最终结果线性转换为0 - 100分(100分为最佳积极分数)。结果如下:0 - 49分为严重影响(SI),50 - 70分为中度影响(MI),71 - 100分为轻度影响或无影响(DI/NI)。变量包括:性别、年龄、治疗天数、居住情况:家中(H)/养老院(NH)、通过体积比(V/V)测试确定的商业增稠剂类型(CT):花蜜状(N)、蜂蜜状(H)、布丁状(P)、使用CT的天数、饮食类型;泥状饮食(PD)、软食(SD)、混合饮食(P&S/D)、普通饮食(RD)、SWAL-QoL各部分。结果:共纳入202例患者,平均年龄85岁(23 - 103岁);四分位间距(IQR):12。女性居多,占57.9%。居住情况:43.1%在家中/56.9%在养老院。SWAL-QoL结果:严重影响占19.3%,中度影响占59.9%,轻度影响或无影响占20.8%。使用较少量增稠剂表明生活质量更好;布丁状增稠剂的严重影响为21.1%,花蜜状为15.3%,p = 0.04。饮食类型包括66.3%的泥状饮食;3%的软食;混合饮食占21.3%,普通饮食占9.4%。在养老院,泥状饮食占86.1%,而在家中占40.2%,p < 0.001。饮食对生活质量的直接影响:分组饮食中轻度影响或无影响占30.8%,而泥状饮食占15.7%,p = 0.016。按家中/养老院分析各部分,恐惧方面存在显著差异,家中更高,为57.01±36.41,而养老院为48.70±27.03,p < 0.001;养老院的心理健康状况更差,为66.44±34.30,而家中为47.48±24.06,p < 0.001;家中的食物选择更好,为75.86±34.12,而养老院为68.17±33.60,p < 0.01。结论:明确生活质量有助于更好地了解患者需求。提供更多应对其恐惧的信息有助于合理调整液体质地。尤其对于住在养老院的患者,需要增加饮食适应性并丰富食物选择的多样性。

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