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先天性心脏病患儿心脏神经发育评估的影响。

Impact of Cardiac Neurodevelopmental Evaluation for Children with Congenital Heart Disease.

机构信息

Department of Pediatrics, Division of Pediatric Cardiology, Emory University School of Medicine, Children's Healthcare of Atlanta and Sibley Heart Center Cardiology, Atlanta, United States.

Department of Neuropsychology, Children's Healthcare of Atlanta, and Department of Rehabilitation Medicine, Emory University, Atlanta, United States.

出版信息

Dev Neuropsychol. 2022 Jan-Feb;47(1):32-41. doi: 10.1080/87565641.2021.2009482. Epub 2021 Dec 13.

DOI:10.1080/87565641.2021.2009482
PMID:34894903
Abstract

Children with congenital heart disease (CHD) are at increased risk for neurodevelopmental delays. This study of school-aged children with single ventricle CHD compared access to services for those who did and did not complete an evaluation. Children completing an evaluation had more academic services, including an Individualized Education Plan (66% vs 34%,P = .017), small group academic instruction (54% vs 20%,P = .01), any instructional supports (77% vs 44%,P = .008). A barrier to not completing the evaluation was lack of knowledge about the Cardiac Neurodevelopmental Program (82%). The neurodevelopmental evaluation is an impactful tool that can increase access to school services in vulnerable CHD patients.

摘要

患有先天性心脏病 (CHD) 的儿童发生神经发育迟缓的风险增加。这项对学龄期单心室 CHD 儿童的研究比较了接受评估和未接受评估的儿童获得服务的机会。完成评估的儿童获得了更多的学术服务,包括个别化教育计划(66% 比 34%,P =.017)、小组学术指导(54% 比 20%,P =.01)和任何教学支持(77% 比 44%,P =.008)。未完成评估的障碍是对心脏神经发育计划缺乏了解(82%)。神经发育评估是一种有影响力的工具,可以增加弱势 CHD 患者获得学校服务的机会。

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引用本文的文献

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"It's more than just a conversation about the heart": exploring barriers, enablers, and opportunities for improving the delivery and uptake of cardiac neurodevelopmental follow-up care.“这不仅仅是关于心脏的一次对话”:探索改善心脏神经发育后续护理服务提供与接受度的障碍、促进因素和机遇。
Front Pediatr. 2024 May 24;12:1364190. doi: 10.3389/fped.2024.1364190. eCollection 2024.
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Effects of Implementing a Standardized Surveillance Program on Cardiac Neurodevelopmental Program Referral Completion.
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Implementing neurodevelopmental follow-up care for children with congenital heart disease: A scoping review with evidence mapping.实施先天性心脏病患儿神经发育随访护理:基于证据图谱的范围综述
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