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美国国立综合癌症网络虚拟患者宣传峰会:全生命周期癌症

NCCN Virtual Patient Advocacy Summit: Cancer Across the Lifespan.

作者信息

Martin Kara, Schatz Alyssa A, White Jan S, Muss Hyman, Didwania Aarati, Gallo Leigh, Carlson Robert W

机构信息

National Comprehensive Cancer Network, Plymouth Meeting, Pennsylvania.

Patient Advocate, Jan Says Onward, Newark, Delaware.

出版信息

J Natl Compr Canc Netw. 2021 Dec;19(12):1395-1400. doi: 10.6004/jnccn.2021.7087.

Abstract

Patients with cancer have widely divergent experiences throughout their care from screening through survivorship. Differences in care delivery and outcomes may be due to varying patient preferences, patient needs according to stage of life, access to care, and implicit or explicit bias in care according to patient age. NCCN convened a series of stakeholder meetings with patients, caregivers, and patient advocacy groups to discuss the complex challenges and robust opportunities in this space. These meetings informed the NCCN Virtual Patient Advocacy Summit: Cancer Across the Lifespan held on December 10, 2020, which featured a keynote presentation, multidisciplinary panels, and presentations from patient advocacy organizations. This article encapsulates and expounds upon the findings from the stakeholder meetings and discussions during the summit.

摘要

癌症患者在从筛查到康复的整个治疗过程中有着广泛不同的经历。护理提供和结果的差异可能归因于患者偏好各异、根据生活阶段的患者需求、获得护理的机会以及根据患者年龄在护理中存在的隐性或显性偏见。美国国立综合癌症网络(NCCN)召集了一系列与患者、护理人员和患者权益倡导组织的利益相关者会议,以讨论该领域的复杂挑战和巨大机遇。这些会议为2020年12月10日举行的NCCN虚拟患者权益倡导峰会:全生命周期癌症提供了信息,该峰会有主题演讲、多学科小组讨论以及患者权益倡导组织的发言。本文总结并阐述了利益相关者会议及峰会期间讨论的结果。

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