Interdisciplinary Centre for Health Literacy Research, School of Public Health, Bielefeld University, 33615 Bielefeld, Germany.
Department Public Health and Education, Hertie School, 10117 Berlin, Germany.
Int J Environ Res Public Health. 2021 Dec 14;18(24):13185. doi: 10.3390/ijerph182413185.
People with chronic illness are particularly dependent on adequate health literacy (HL), but often report difficulties in accessing, understanding, appraising, and applying health information. To strengthen the HL of people with chronic illness, in-depth knowledge about how they deal with health information is crucial.
To this end, quantitative data from the Second Health Literacy Survey Germany (HLS-GER 2) and qualitative data from seven focus group discussions were used to examine the interest in health information, preferred sources of information as well as experiences and challenges with information management among people with chronic illness.
The results show that people with chronic illness have a great interest in health information and use very different sources of health information, preferring personal information from physicians most. The results also point to several challenges in health information management that seem to be influenced by the illness duration as well as by the experiences made with the respective sources.
Overall, the study provides important starting points for intervention development for the provision and communication of health-related information, but also to research on health information behavior and HL.
慢性病患者特别依赖足够的健康素养（HL），但他们经常报告在获取、理解、评估和应用健康信息方面存在困难。为了增强慢性病患者的 HL，深入了解他们如何处理健康信息至关重要。
为此，使用了德国第二次健康素养调查（HLS-GER 2）的定量数据和来自七个焦点小组讨论的定性数据，研究了慢性病患者对健康信息的兴趣、他们喜欢的信息来源以及他们在信息管理方面的经验和挑战。
结果表明，慢性病患者对健康信息非常感兴趣，并且使用了非常不同的健康信息来源，他们最偏好来自医生的个人信息。结果还指出了健康信息管理方面的一些挑战，这些挑战似乎受到疾病持续时间以及对各自来源的经验的影响。
总的来说，该研究为提供和沟通与健康相关的信息的干预措施的制定提供了重要的起点，也为健康信息行为和 HL 的研究提供了重要的起点。
