Yan Adam Paul, Sawhney Monakshi, Kirby-Allen Melanie
Division of Hematology/Oncology, The University of Toronto, Toronto, Ontario, Canada.
The Hospital for Sick Children, Toronto, Ontario, Canada.
Ochsner J. 2021 Winter;21(4):352-357. doi: 10.31486/toj.20.0149.
Sickle cell disease (SCD) has a significant psychosocial impact on affected children. Summer camp has been shown to improve psychological and physical states for children with diabetes and cancer. However, opportunities to attend camp for children with SCD are limited, as many are from low-income families, and many camps are not equipped to care for children with medical complexities. To our knowledge, no literature evaluates how camp can positively affect emotional functioning, social functioning, self-esteem, and physical activity levels in children with SCD. Children with SCD attending a residential summer camp during 2019 were identified. Participants completed a modified version of the Pediatric Camp Outcome Measure, a validated 29-item questionnaire that evaluates self-esteem, emotional function, social function, and physical activity. Four additional questions related to SCD were included. Nine campers enrolled in the study. Questionnaire results showed a total score of 113.7 (maximum score135, range 84-129), with a self-esteem subscale score of 22.1 (maximum score 25, range 20-25), an emotional subscale score of 32.1 (maximum score 40, range 25-39), a social subscale score of 38.9 (maximum score 45, range 24-45), and a physical activity subscale score of 20.6 (maximum score 25, range 19-25). All campers indicated that they would return to camp. Attending summer camp has a beneficial impact on emotional function, social function, self-esteem, and physical activity. Mean questionnaire scores from children with cardiac disease and cancer are similar to those of children with SCD. Increased funding should be awarded to sickle cell camps to allow for more children to have this beneficial experience.
镰状细胞病（SCD）对患病儿童有着重大的心理社会影响。夏令营已被证明能改善糖尿病和癌症患儿的心理和身体状况。然而，SCD患儿参加夏令营的机会有限，因为许多患儿来自低收入家庭，而且许多营地没有照顾患有复杂疾病儿童的能力。据我们所知，尚无文献评估夏令营如何能对SCD患儿的情绪功能、社交功能、自尊和身体活动水平产生积极影响。我们确定了2019年参加寄宿制夏令营的SCD患儿。参与者完成了一份修改版的《儿科夏令营成果测量表》，这是一份经过验证的29项问卷，用于评估自尊、情绪功能、社交功能和身体活动。另外还包括了4个与SCD相关的问题。9名露营者参与了该研究。问卷结果显示总分113.7（满分135，范围84 - 129），自尊子量表得分为22.1（满分25，范围20 - 25），情绪子量表得分为32.1（满分40，范围25 - 39），社交子量表得分为38.9（满分45，范围24 - 45），身体活动子量表得分为20.6（满分25，范围19 - 25）。所有露营者都表示他们会再次参加夏令营。参加夏令营对情绪功能、社交功能、自尊和身体活动有有益影响。心脏病和癌症患儿的问卷平均得分与SCD患儿相似。应增加对镰状细胞病夏令营的资金投入，以便更多儿童能有这种有益的体验。
