Dahl Claire M, Kroupina Maria, Said Sameh M, Somani Arif
Department of Pediatrics, University of Minnesota, Minneapolis, MN, United States.
Division of Pediatric Cardiovascular Surgery, Masonic Children's Hospital, Minneapolis, MN, United States.
Front Pediatr. 2021 Dec 24;9:790066. doi: 10.3389/fped.2021.790066. eCollection 2021.
This brief case report outlines a novel approach to supporting the development of a pediatric complex cardiac care patient. Patient X is a 19-month old patient who spent 5.5 months in hospital and underwent multiple surgeries including heart transplantation. This case report explores the impacts of his condition and care on his development and family functioning within the framework of an integrated care model. This case report is uniquely complimented by outpatient neurodevelopmental follow up, dyadic trauma-informed intervention and use of telemedicine allowing for a deeper understanding of the family adaptation that provide novel insight into long-term trajectory beyond discharge. Throughout care Patient X met criteria for both a traumatic stress disorder and global developmental delay. This case study highlights the threat complex care poses to neurodevelopment, pediatric mental health and family dynamics as well as opportunities for intervention.
本病例报告简要概述了一种支持小儿复杂心脏护理患者发展的新方法。患者X是一名19个月大的患者,在医院住了5.5个月,接受了包括心脏移植在内的多次手术。本病例报告在综合护理模式的框架内探讨了他的病情和护理对其发育及家庭功能的影响。门诊神经发育随访、二元创伤知情干预和远程医疗的使用为这份病例报告增色不少,有助于更深入地了解家庭适应情况,为出院后的长期发展轨迹提供新的见解。在整个护理过程中,患者X符合创伤后应激障碍和全面发育迟缓的标准。本案例研究强调了复杂护理对神经发育、儿童心理健康和家庭动态构成的威胁以及干预机会。