Cousino Melissa K, Schumacher Kurt R, Rea Kelly E, Eder Sally, Zamberlan Mary, Jordan Jessica, Fredericks Emily M
Department of Pediatrics, Michigan Medicine, Ann Arbor, MI, USA.
University of Michigan Transplant Center, Ann Arbor, MI, USA.
Pediatr Transplant. 2018 Mar;22(2). doi: 10.1111/petr.13110. Epub 2018 Jan 5.
Across pediatric organ transplant populations, patient and family psychosocial functioning is associated with important health-related outcomes. Research has suggested that pediatric heart transplant recipients and their families are at increased risk for adverse psychosocial outcomes; however, recent investigation of psychosocial functioning in this population is lacking. This study aimed to provide a contemporary characterization of psychosocial functioning in pediatric heart transplant recipients and their families. Associations between psychosocial function, demographic variables, and transplant-related variables were investigated. Fifty-six parents/guardians of pediatric heart transplant recipients completed a comprehensive psychosocial screening measure during transplant follow-up clinic visits. Descriptive statistics, correlational analyses, and independent samples t tests were performed. Forty percent of pediatric heart transplant recipients and their families endorsed clinically meaningful levels of total psychosocial risk. One-third of patients presented with clinically significant psychological problems per parent report. Psychosocial risk was unassociated with demographic or transplant-related factors. Despite notable improvements in the survival of pediatric heart transplant recipients over the past decade, patients and families present with sustained psychosocial risks well beyond the immediate post-transplant period, necessitating mental health intervention to mitigate adverse impact on health-related outcomes.
在儿科器官移植人群中，患者及其家庭的心理社会功能与重要的健康相关结果有关。研究表明，儿科心脏移植受者及其家庭出现不良心理社会结果的风险增加；然而，最近缺乏对该人群心理社会功能的调查。本研究旨在对儿科心脏移植受者及其家庭的心理社会功能进行当代特征描述。研究了心理社会功能、人口统计学变量和移植相关变量之间的关联。56名儿科心脏移植受者的父母/监护人在移植随访门诊就诊期间完成了一项全面的心理社会筛查措施。进行了描述性统计、相关性分析和独立样本t检验。40%的儿科心脏移植受者及其家庭认可了具有临床意义的总体心理社会风险水平。根据家长报告，三分之一的患者存在具有临床意义的心理问题。心理社会风险与人口统计学或移植相关因素无关。尽管在过去十年中儿科心脏移植受者的生存率有了显著提高，但患者及其家庭在移植后很长一段时间内仍存在持续的心理社会风险，因此需要进行心理健康干预以减轻对健康相关结果的不利影响。
