Faculty of Medicine, Federal University of Goiás, Goiania 74605-050, Brazil.
Faculty of Nursing, Federal University of Goiás, Goiania 74605-080, Brazil.
Int J Environ Res Public Health. 2021 Dec 24;19(1):185. doi: 10.3390/ijerph19010185.
Caregivers of individuals with cancer in the COVID-19 pandemic are faced with the demands of cancer and the health needs produced by it, along with their own health and self-care needs, and the uncertainties of expectations and risks. A qualitative analytical phenomenological study with caregivers of individuals with cancer registered at the state referral hospital supplying medications, who answered the sociodemographic assessment questionnaires and semi-structured questions about their feelings and perceptions in the COVID-19 pandemic. Bardin's content analysis was used, with methodological quality assessed using SRQR Standards for Reporting Qualitative Research and the MAXQDA software. Most of the caregivers are women, married, Catholic, of low income and education, aged between 30 and 60 years, optimistic, comply with health guidelines regarding social distancing, use of masks, and routine hand hygiene, do not practice regular physical activities, mention concern for their own physical and financial survival, and that of their family. The main need identified in the affective sphere was to reframe contact with family members, seeking to strengthen the bonds of affection. The feeling of emotional vulnerability shows the importance of building effective public policies for social support consistent with the improvement of health care for this population.
在 COVID-19 大流行期间,癌症患者的照顾者面临着癌症及其带来的健康需求,以及他们自己的健康和自我护理需求,以及期望和风险的不确定性。这是一项针对在提供药物的州转诊医院注册的癌症患者照顾者的定性分析现象学研究,他们回答了社会人口统计学评估问卷和关于他们在 COVID-19 大流行期间的感受和看法的半结构化问题。采用了 Bardin 的内容分析法,使用 SRQR 标准评估方法对定性研究进行质量评估和 MAXQDA 软件。大多数照顾者是女性、已婚、天主教徒、收入和教育水平低、年龄在 30 至 60 岁之间、乐观、遵守关于保持社交距离、使用口罩和常规手部卫生的健康指南,不进行定期体育活动,提到对自己的身体和财务生存以及家人的关注。在情感领域确定的主要需求是重新调整与家人的接触,试图加强亲情纽带。情感脆弱感表明,需要制定与改善这一人群的医疗保健相一致的有效社会支持公共政策。