Hameed Noufal Thadathukunnel, Satheesan Sisira Chalapurath, Santhamma Jameela Padmalayam
Thanal Academy of Rehabilitation Studies, Kozhikode, Kerala, India.
Government Mental Health Centre, Kozhikode, Kerala, India.
Ind Psychiatry J. 2021 Jul-Dec;30(2):272-277. doi: 10.4103/ipj.ipj_235_20. Epub 2021 Aug 19.
The COVID-19 pandemic's emergence necessitated that clinic/hospital-based rehabilitation is replaced or substituted by other modes. Using telecommunication devices was found a convenient alternative.
Present study explored the telerehabilitation experiences of the parents of children with developmental disabilities (CDD).
The study was conducted among the service users of a not-for-profit NGO located in Kerala. Parents of children with one or more developmental disabilities formed the population of the present study. The present study was a cross-sectional exploratory survey.
A total of 205 parents took part in the study using a brief open-ended survey. The majority of the participants were females (65%).
The sociodemographic data were analyzed using frequency and percentage. The qualitative data were analyzed using thematic analysis.
Overall, the study found that parents experienced more challenges in telerehabilitation compared to face-to-face interventions. Perceived challenges included externalizing problems, reduced effectiveness, logistical issues, multiple disabilities, and the child's lack of interest in gadgets. Perceived advantages included the child's liking for the device and increased availability of time.
In short, the study throws light on the various challenges experienced by parents in implementing telerehabilitation for their CDD. The findings strongly recommend fine-tuning telerehabilitation programs to meet these challenges to provide optimal care to our children with special needs.
2019冠状病毒病疫情的出现使得以诊所/医院为基础的康复不得不被其他模式所取代或替代。人们发现使用电信设备是一种方便的替代方式。
本研究探讨了发育障碍儿童（CDD）家长的远程康复体验。
该研究在喀拉拉邦一家非营利性非政府组织的服务用户中进行。患有一种或多种发育障碍的儿童的家长构成了本研究的人群。本研究为横断面探索性调查。
共有205名家长参与了这项使用简短开放式调查的研究。大多数参与者为女性（65%）。
使用频率和百分比对社会人口统计学数据进行分析。使用主题分析对定性数据进行分析。
总体而言，研究发现与面对面干预相比，家长在远程康复中遇到了更多挑战。感知到的挑战包括外化问题、效果降低、后勤问题、多重残疾以及孩子对小工具缺乏兴趣。感知到的优势包括孩子对设备的喜爱以及时间可用性增加。
简而言之，该研究揭示了家长在为其发育障碍儿童实施远程康复时所面临的各种挑战。研究结果强烈建议对远程康复项目进行微调，以应对这些挑战，从而为我们有特殊需求的儿童提供最佳护理。
