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西班牙重度哮喘青少年从儿科护理向成人护理的过渡:STAR共识

Transition of Adolescents With Severe Asthma From Pediatric to Adult Care in Spain: The STAR Consensus.

作者信息

Valverde-Molina J, Fernández-Nieto M, Torres-Borrego J, Lozano Blasco J, de Mir-Messa I, Blanco-Aparicio M, Nieto A, Figuerola Mulet J, Moure A L, Sánchez-Herrero M G, Sánchez-García S

机构信息

Servicio de Pediatría, H.G. Universitario Santa Lucía, Cartagena, Spain.

Allergy Department UMA, Fundación Jiménez Díaz, Madrid, Spain.

出版信息

J Investig Allergol Clin Immunol. 2023 Jun 15;33(3):179-189. doi: 10.18176/jiaci.0780. Epub 2022 Jan 14.

Abstract

OBJECTIVES

To assess the degree of consensus among a multidisciplinary expert panel on the transition of adolescents with severe asthma from pediatric to adult care.

METHODS

A 61-item survey was developed based on guidelines for other chronic diseases, covering transition planning, preparation, effective transfer, and follow-up. A 2-round Delphi process assessed the degree of consensus among 98 experts (49 pediatricians, 24 allergists, and 25 pulmonologists). Consensus was established with ≥70% agreement.

RESULTS

Consensus was reached for 42 items (70%). Panelists were unable to agree on an age range for initiation of transition. The main goal during the transition identified by the experts is for adolescents to gain autonomy in managing severe asthma and prescribed treatments. The panelists agreed on the importance of developing an individualized plan, promoting patient autonomy, and identifying factors associated with the home environment. They agreed that the adult health care team should have expertise in severe asthma, biologics, and management of adolescent patients. Pediatric and adult health care teams should share clinical information, agree on the criteria for maintaining biological therapy, and have an on-site joint visit with the patient before the effective transfer. Adult health care professionals should closely follow the patient after the effective transfer to ensure correct inhaler technique, adherence, and attendance at health care appointments.

CONCLUSION

This consensus document provides the first roadmap for Spanish pediatric and adult teams to ensure that key aspects of the transition process in severe asthma are covered. The implementation of these recommendations will improve the quality of care offered to the patient.

摘要

目的

评估多学科专家小组在重度哮喘青少年从儿科护理过渡到成人护理方面的共识程度。

方法

根据其他慢性病指南制定了一份包含61个条目的调查问卷,涵盖过渡计划、准备工作、有效转诊及随访。通过两轮德尔菲法评估了98位专家(49名儿科医生、24名过敏症专科医生和25名肺病专家)的共识程度。达成共识的标准是≥70%的同意率。

结果

42个条目(70%)达成了共识。专家小组成员未能就开始过渡的年龄范围达成一致。专家们确定的过渡期间的主要目标是让青少年在重度哮喘及规定治疗的管理方面获得自主权。专家小组成员一致认为制定个性化计划、促进患者自主以及识别与家庭环境相关的因素很重要。他们一致认为成人医疗团队应具备重度哮喘、生物制剂及青少年患者管理方面的专业知识。儿科和成人医疗团队应共享临床信息,就维持生物治疗的标准达成一致,并在有效转诊前与患者进行一次现场联合问诊。成人医疗专业人员应在有效转诊后密切跟踪患者,以确保正确的吸入器使用技术、依从性以及按时就诊。

结论

本共识文件为西班牙儿科和成人团队提供了首个路线图,以确保涵盖重度哮喘过渡过程的关键方面。这些建议的实施将提高为患者提供的护理质量。

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