探讨 HIV 残障问卷（HDQ）在临床实践中的效用：HIV 感染者和医疗保健提供者的观点。
Examining the Utility of the HIV Disability Questionnaire (HDQ) in Clinical Practice: Perspectives of People Living with HIV and Healthcare Providers.
机构信息
School of Rehabilitation Therapy, 4257Queen's University, Kingston, ON, Canada.
Chronic Pain Clinic, Kingston Health Sciences Centre, Kingston, ON, Canada.
出版信息
J Int Assoc Provid AIDS Care. 2022 Jan-Dec;21:23259582221079148. doi: 10.1177/23259582221079148.
Our aim was to examine the utility of the HIV Disability Questionnaire (HDQ), a patient-reported outcome measure for use in clinical practice from the perspectives of people living with HIV (PLWH) and healthcare providers. We conducted a qualitative descriptive study. Fifteen PLWH and five healthcare providers participated in an interview, of which ten PLWH participated in a follow-up focus group discussion. The HDQ has value in clinical practice, including its role in assessing disability, facilitating communication, tailoring treatments, and guiding referrals. Strengths of the HDQ included its comprehensiveness, relevance of domains, and importance of specific items. Concerns related to length of the HDQ, the potential for some items to trigger emotional response, and negative connotations with the term 'disability.' Recommendations for HDQ implementation included the importance of score interpretability, shortening the questionnaire, and tailoring administration to the individual. Results suggest the HDQ possesses clinical utility with PLWH and healthcare providers.
我们的目的是从 HIV 感染者（PLWH）和医疗保健提供者的角度，研究 HIV 残疾问卷（HDQ）作为一种用于临床实践的患者报告结局测量工具的效用。我们进行了一项定性描述性研究。15 名 PLWH 和 5 名医疗保健提供者参加了访谈，其中 10 名 PLWH 参加了后续焦点小组讨论。HDQ 在临床实践中有一定价值，包括评估残疾、促进沟通、定制治疗方案和指导转介等方面。HDQ 的优势包括其全面性、领域相关性和特定项目的重要性。人们对 HDQ 的长度、某些项目可能引发情绪反应以及“残疾”一词的负面含义表示关注。对 HDQ 实施的建议包括评分解释性、缩短问卷和针对个体进行管理的重要性。结果表明，HDQ 对 PLWH 和医疗保健提供者具有临床效用。
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