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淋巴瘤青年成人急性幸存者的生活经历

Lived Experiences of Young Adults With Lymphoma During Acute Survivorship.

作者信息

Vena Joseph A, Copel Linda, McDermott-Levy Ruth

机构信息

Author Affiliation: M. Louise Fitzpatrick College of Nursing, Villanova University, Pennsylvania.

出版信息

Cancer Nurs. 2023;46(1):E11-E20. doi: 10.1097/NCC.0000000000001066. Epub 2022 Feb 17.

Abstract

BACKGROUND

Hodgkin lymphoma and non-Hodgkin lymphoma are hematologic malignancies of the lymphatic system with increased prevalence in young adults. Numerous studies have examined the health-related quality of life dimensions in young adults with lymphoma; yet, limited research has investigated the experiences of this population.

OBJECTIVE

This study aimed to explore the lived experiences of young adults with Hodgkin lymphoma and non-Hodgkin lymphoma ( n = 8) receiving acute treatment from one National Cancer Institute-Designated Cancer Center in the Northeastern United States.

METHODS

A qualitative interpretive phenomenological study design and method was applied to explore the lived experiences of young adults with lymphoma during acute survivorship.

RESULTS

The participants lived experiences were shaped by the diagnostic challenges and impediments of cancer and lymphoma in young adults. Through postdiagnosis, they were determined to safeguard parents and close family members from the burden of cancer. The bonds between medical oncologists and nurses offered the participants a dynamic structure to endure acute survivorship.

CONCLUSION

Cancer was challenging to diagnose in this sample of young adults with lymphoma. The presence of nurses was shown to be deeply impactful for young adults with lymphoma. More research is necessary to understand the experiences of young adults with lymphoma through extended or long-term survivorship.

IMPLICATIONS FOR PRACTICE

Healthcare providers require additional education regarding the diagnostic guidelines in young adult patients with lymphoma. This study underscores the importance of well-defined and structured postdiagnosis survivorship care in young adults with lymphoma.

摘要

背景

霍奇金淋巴瘤和非霍奇金淋巴瘤是淋巴系统的血液恶性肿瘤,在年轻人中的患病率有所增加。许多研究调查了淋巴瘤青年患者与健康相关的生活质量维度;然而,对这一人群经历的研究有限。

目的

本研究旨在探索美国东北部一家国立癌症研究所指定癌症中心接受急性治疗的8例霍奇金淋巴瘤和非霍奇金淋巴瘤青年患者的生活经历。

方法

采用定性解释现象学研究设计和方法,探索淋巴瘤青年患者急性生存期的生活经历。

结果

参与者的生活经历受到青年癌症和淋巴瘤诊断挑战及障碍的影响。确诊后,他们决心保护父母和亲密家庭成员免受癌症负担。肿瘤内科医生和护士之间的关系为参与者提供了承受急性生存期的动态结构。

结论

在这个淋巴瘤青年患者样本中,癌症诊断具有挑战性。护士的存在对淋巴瘤青年患者有深远影响。有必要开展更多研究,以了解淋巴瘤青年患者在延长生存期或长期生存期间的经历。

对实践的启示

医疗服务提供者需要接受关于淋巴瘤青年患者诊断指南的额外教育。本研究强调了为淋巴瘤青年患者提供明确且结构化的确诊后生存护理的重要性。

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