Respiratory Department, University Hospital of Limerick, Limerick, Ireland.
Department of Nursing and Midwifery, University of Limerick, Limerick, Ireland.
J Adv Nurs. 2022 Jul;78(7):2232-2244. doi: 10.1111/jan.15187. Epub 2022 Feb 18.
To explore the experience of people with idiopathic pulmonary fibrosis living through the COVID-19 pandemic.
A qualitative descriptive design using semi-structured interviews.
Purposive sampling was employed to recruit 13 participants with idiopathic pulmonary fibrosis attending the respiratory department of a large urban teaching hospital in Limerick, Ireland. Data were collected between January 2021 and February 2021 through semi-structured interviews, using an online platform. Reflective thematic analysis was used for data analysis.
Four key themes were identified from participant's experience of living through the COVID-19 pandemic: (1) fear of contracting COVID-19 disease, (2) living with reduced social interaction, (3) the adjustment in the relationship with healthcare professionals (HCP) and (4) navigating an altered landscape.
Healthcare professionals have a key role in protecting the physical and psychological health of the person with idiopathic pulmonary fibrosis during this time and into the future. Through being cognisant of the additional supportive care needs of people with idiopathic pulmonary fibrosis, HCP can focus on developing targeted interventions aimed to enhance care provision.
This study considers people with idiopathic pulmonary fibrosis as a particularly vulnerable group whose experiences of living through the COVID-19 pandemic warrant specific attention. Participants felt compelled to self-isolate due to fear and anxiety of contracting COVID-19 disease. Participants reported increased social isolation with some experiencing anger and resentment at loss of precious time with loved ones. Participants felt an increased responsibility for self-monitoring their condition and had concerns about differentiating symptoms of COVID-19 disease from an exacerbation. A variety of strategies that helped them cope through the pandemic were identified and also the important role these played. The results from this study can be used to inform HCP' understanding of challenges experienced by people with idiopathic pulmonary fibrosis during enforced restrictions related to the COVID-19 pandemic.
探索特发性肺纤维化患者在 COVID-19 大流行期间的生活体验。
采用半结构式访谈的定性描述设计。
采用目的抽样法，在爱尔兰利默里克市一家大型城市教学医院的呼吸科招募了 13 名特发性肺纤维化患者参与研究。于 2021 年 1 月至 2 月通过在线平台收集半结构式访谈数据。采用反思性主题分析对数据进行分析。
从参与者在 COVID-19 大流行期间的生活体验中确定了四个主要主题：（1）担心感染 COVID-19 疾病，（2）社交互动减少，（3）与医疗保健专业人员（HCP）的关系调整，以及（4）应对变化的环境。
在此期间及以后，医疗保健专业人员在保护特发性肺纤维化患者的身心健康方面发挥着关键作用。通过意识到特发性肺纤维化患者的额外支持性护理需求，HCP 可以专注于制定有针对性的干预措施，以增强护理服务。
本研究将特发性肺纤维化患者视为一个特别脆弱的群体，他们在 COVID-19 大流行期间的生活经历需要特别关注。由于担心感染 COVID-19 疾病，参与者感到被迫自我隔离。一些参与者报告社交隔离程度增加，对与亲人失去宝贵时间感到愤怒和怨恨。参与者感到对自我监测病情的责任增加，并对区分 COVID-19 疾病症状与病情恶化感到担忧。确定了一些帮助他们度过大流行的策略，以及这些策略的重要作用。本研究的结果可用于告知 HCP 了解特发性肺纤维化患者在与 COVID-19 大流行相关的强制性限制期间所经历的挑战。
