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慢性病适应综合模型的验证:对成人发作性癫痫的适用性。

Validation of the integrative model of adjustment to chronic conditions: Applicability to adult-onset epilepsy.

作者信息

Hammond L D, Farrington A P, Kılınç S

机构信息

Teesside University, UK.

出版信息

Health Psychol Open. 2019 Nov 7;6(2):2055102919884293. doi: 10.1177/2055102919884293. eCollection 2019 Jul-Dec.

DOI:10.1177/2055102919884293
PMID:35186308
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8851134/
Abstract

Adapting to life with adult-onset epilepsy is a challenge and there is a need for better interventions to support people, who have difficulty with psychosocial adjustment to the condition. The integrative model of adjustment to chronic conditions was developed for type 2 diabetes. This study aimed to demonstrate the applicability of the model to adult-onset epilepsy and thus make an original contribution to the development of relevant interventions. Qualitative data from a previous phenomenological study on the experience of adult-onset epilepsy were mapped onto the integrative model of adjustment to chronic conditions using framework analysis. Ten of the original 39 datasets were selected. All 10 datasets were from females diagnosed with epilepsy within 5 years before participation in the original study. The results demonstrated applicability of the integrative model of adjustment to chronic conditions after minor revisions to the model. These findings support further development of the integrative model of adjustment to chronic conditions for use as a clinical intervention for people with adult-onset epilepsy.

摘要

适应成人期癫痫的生活是一项挑战,需要更好的干预措施来支持那些在心理社会适应方面存在困难的患者。慢性病适应的整合模型是针对2型糖尿病开发的。本研究旨在证明该模型对成人期癫痫的适用性,从而为相关干预措施的发展做出原创性贡献。使用框架分析,将先前一项关于成人期癫痫经历的现象学研究中的定性数据映射到慢性病适应的整合模型上。从最初的39个数据集中选取了10个。所有10个数据集均来自在参与原研究前5年内被诊断为癫痫的女性。结果表明,对该模型进行小的修订后,慢性病适应的整合模型具有适用性。这些发现支持进一步开发慢性病适应的整合模型,以作为成人期癫痫患者的临床干预措施。

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引用本文的文献

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Verification of the Integrative Model of Adjustment to Chronic Conditions by Mapping it Onto the World Health Organization's International Classification of Function, Disability and Health.通过将慢性病适应综合模型映射到世界卫生组织的《国际功能、残疾和健康分类》来验证该模型。
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本文引用的文献

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Self-management capability in patients with long-term conditions is associated with reduced healthcare utilisation across a whole health economy: cross-sectional analysis of electronic health records.长期慢性病患者的自我管理能力与整个卫生经济的医疗保健利用减少有关:电子健康记录的横断面分析。
BMJ Qual Saf. 2018 Dec;27(12):989-999. doi: 10.1136/bmjqs-2017-007635. Epub 2018 Aug 23.
2
Psychological treatments for adults and children with epilepsy: Evidence-based recommendations by the International League Against Epilepsy Psychology Task Force.癫痫成人和儿童的心理治疗:国际抗癫痫联盟心理工作组的循证建议。
Epilepsia. 2018 Jul;59(7):1282-1302. doi: 10.1111/epi.14444. Epub 2018 Jun 19.
3
Parental Perspectives of the Impact of Epilepsy and Seizures on Siblings of Children with Epilepsy.
父母对癫痫儿童的兄弟姐妹所受癫痫和发作影响的看法。
J Pediatr Health Care. 2018 Jul-Aug;32(4):348-355. doi: 10.1016/j.pedhc.2017.12.004. Epub 2018 Feb 6.
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Managing multimorbidity: Profiles of integrated care approaches targeting people with multiple chronic conditions in Europe.管理多重疾病:针对欧洲多种慢性疾病患者的综合护理方法简介。
Health Policy. 2018 Jan;122(1):44-52. doi: 10.1016/j.healthpol.2017.10.002. Epub 2017 Oct 19.
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Frequency and predictors of psychological distress after a diagnosis of epilepsy: A community-based study.癫痫诊断后心理困扰的发生率及预测因素:一项基于社区的研究。
Epilepsy Behav. 2017 Oct;75:190-195. doi: 10.1016/j.yebeh.2017.07.044. Epub 2017 Sep 15.
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The experience of living with adult-onset epilepsy.成人期癫痫的生活体验。
Epilepsy Behav. 2017 Aug;73:189-196. doi: 10.1016/j.yebeh.2017.05.038. Epub 2017 Jun 21.
7
Becoming comfortable with "my" epilepsy: Strategies that patients use in the journey from diagnosis to acceptance and disclosure.坦然面对“我的”癫痫:患者在从诊断到接受与披露过程中所采用的策略。
Epilepsy Behav. 2017 May;70(Pt A):217-223. doi: 10.1016/j.yebeh.2017.02.001. Epub 2017 Apr 20.
8
Family burden, child disability, and the adjustment of mothers caring for children with epilepsy: Role of social support and coping.家庭负担、儿童残疾与癫痫患儿母亲的调适:社会支持与应对的作用
Epilepsy Behav. 2017 Mar;68:168-173. doi: 10.1016/j.yebeh.2017.01.013. Epub 2017 Feb 12.
9
Identifying the barriers to antiepileptic drug adherence among adults with epilepsy.识别成年癫痫患者抗癫痫药物依从性的障碍。
Seizure. 2017 Feb;45:160-168. doi: 10.1016/j.seizure.2016.12.006. Epub 2016 Dec 23.
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J Health Psychol. 2018 Jul;23(8):1063-1074. doi: 10.1177/1359105316664131. Epub 2016 Aug 25.