Wicking Dementia Research & Education Centre, College of Health and Medicine, University of Tasmania, Hobart, TAS, Australia.
Aging Ment Health. 2023 May;27(5):887-895. doi: 10.1080/13607863.2022.2042188. Epub 2022 Feb 23.
This study compared discussion board involvement between family carers and non-carers in the Understanding Dementia Massive Open Online Course (UD-MOOC).
A mixed methods observational cohort study of family carers and non-carers was undertaken over the February-April 2020 UD-MOOC. Discussion board engagement was measured as number of posts and replies and examined longitudinally using mixed models. Discussion topics were explored through structural topic models (STM). Subsequently, thematic analysis of STM derived-topic exemplars was conducted to contextualise these discussions.
Family carers were ( = 2320) found to post ( < 0.001) and reply ( = 0.029) significantly more often than non-carers ( = 2392). Of the 32-STM derived-topics, meaningful activities (mean Δ = 0.007, 95% CrI [0.005-0.100]), personal stories of diagnosis (mean Δ = 0.007, 95% CrI [0.005-0.009]), and family history of dementia (mean Δ = 0.006, 95% CrI [0.004-0.008]) were discussed significantly more frequently by family carers compared to non-carers.
These results may reflect underlying motivational differences and circumstantial relevance. Perhaps the greater engagement by family carers is related to a sense of having inadequate relevant offline social resources, where engagement in the UD-MOOC discussion boards may serve as means to share experiences with others.
本研究比较了参与和不参与“理解痴呆症大规模开放在线课程（UD-MOOC）”的家庭照顾者在讨论板上的参与度。
这是一项关于家庭照顾者和非照顾者的混合方法观察队列研究，在 2020 年 2 月至 4 月的 UD-MOOC 期间进行。使用混合模型纵向测量讨论板参与度，作为帖子和回复的数量进行测量。通过结构主题模型（STM）探讨讨论主题。随后，对 STM 衍生主题范例进行主题分析，以对这些讨论进行背景化。
发现家庭照顾者（ = 2320）的帖子（ < 0.001）和回复（ = 0.029）频率明显高于非照顾者（ = 2392）。在 32 个 STM 衍生主题中，家庭照顾者讨论的有意义活动（平均 Δ = 0.007，95% CrI [0.005-0.100]）、个人诊断故事（平均 Δ = 0.007，95% CrI [0.005-0.009]）和家族痴呆史（平均 Δ = 0.006，95% CrI [0.004-0.008]）的频率明显高于非照顾者。
这些结果可能反映了潜在的动机差异和环境相关性。也许家庭照顾者的更高参与度与他们感到缺乏相关的线下社交资源有关，而参与 UD-MOOC 讨论板可能成为与他人分享经验的一种方式。
