Lawson Natalie, Lennon Papadakis Jaclyn, Holmbeck Grayson N
Loyola University of Chicago.
Undergrad Res J Psychol UCLA. 2018 Spring;5:40-53.
Spina bifida (SB) is a congenital birth defect causing a wide variance of physical and intellectual disabilities. The first objective of this study was to examine SES and parental perceived support as predictors of HRQoL among youth with SB. It was hypothesized that lower SES would predict lower youth HRQoL, and higher parental perceived support would predict higher youth HRQOL. The second objective of this study was to examine parental perceived support as a moderator of the association between SES and youth HRQoL. Parental perceived support was hypothesized to serve as a buffer of the negative impact that low SES has on HRQoL. Results indicated significant effects of SES on school, physical, and total HRQoL subscales when covariates were not included. In addition, parental perceptions of social support from family members were significantly associated with Emotional HRQoL in youth with SB. There was a significant interaction between SES and parental perceived support from friends predicting youth Social HRQoL. However, post-hoc simple slope analyses were not significant. This study works to expand the understanding of the roles of SES and parental perceived social support on the HRQoL in children with SB, a population susceptible to poor quality of life due to the physical and cognitive challenges commonly associated with this condition.
脊柱裂（SB）是一种先天性出生缺陷，会导致广泛的身体和智力残疾。本研究的首要目标是检验社会经济地位（SES）和父母感知到的支持作为脊柱裂青少年健康相关生活质量（HRQoL）预测因素的情况。研究假设较低的社会经济地位会预测较低的青少年健康相关生活质量，而较高的父母感知到的支持会预测较高的青少年健康相关生活质量。本研究的第二个目标是检验父母感知到的支持作为社会经济地位与青少年健康相关生活质量之间关联的调节因素的情况。研究假设父母感知到的支持会作为低社会经济地位对健康相关生活质量负面影响的缓冲因素。结果表明，在不纳入协变量时，社会经济地位对学校、身体和总体健康相关生活质量分量表有显著影响。此外，脊柱裂青少年中，父母对来自家庭成员社会支持的感知与情绪健康相关生活质量显著相关。在预测青少年社会健康相关生活质量方面，社会经济地位与父母感知到的来自朋友的支持之间存在显著交互作用。然而，事后简单斜率分析并不显著。本研究致力于拓展对社会经济地位和父母感知到的社会支持在脊柱裂儿童健康相关生活质量中所起作用的理解，脊柱裂儿童群体由于通常与此病症相关的身体和认知挑战而容易出现生活质量不佳的情况。
