Division of Dermatology, Dell Medical School, Austin, Texas, USA.
Dell Children's Medical Center, Austin, Texas, USA.
Pediatr Dermatol. 2022 May;39(3):497-501. doi: 10.1111/pde.14951. Epub 2022 Mar 1.
Although dermatologists are well-trained in the medical management of complex skin disease, psychosocial care often exceeds a dermatologist's skillset. We aim to elucidate major factors to consider in the comprehensive management of pediatric epidermolysis bullosa (EB) and provide care recommendations. There are many types of trauma a child with EB may experience, from social to psychological to medical. We include information on trauma-informed care and advice for the dermatologist and multidisciplinary team regarding patient-centered and family-centered approaches to recognizing and reducing anxiety and trauma in EB patients.
尽管皮肤科医生在复杂皮肤病的医学管理方面受过良好的培训，但心理社会护理通常超出了皮肤科医生的技能范围。我们旨在阐明在小儿大疱性表皮松解症 (EB) 的综合管理中需要考虑的主要因素，并提供护理建议。患有 EB 的儿童可能会经历许多类型的创伤，包括社交、心理和医疗方面的创伤。我们介绍了有关创伤知情护理的信息，并就以患者为中心和以家庭为中心的方法为皮肤科医生和多学科团队提供了建议，以识别和减少 EB 患者的焦虑和创伤。
